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Remicade stopped working...now Humira. Please help

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Posted 6/15/2009 7:50 PM (GMT 0)
Im sure this question has been asked before but I could'nt find the thread. Remicade has stopped working for me after 8 months so now they want me to start Humira. Has anyone also experienced this and how did the humira work for you???
Posted 6/15/2009 8:45 PM (GMT 0)
Hi yellowfin, i too am in the same boat as you had a reaction to remi while having my 2nd infusion in may rolleyes on a washout period at the mo  seeing Gi next week to get the go ahead for humira Bev x 

Posted 6/15/2009 9:30 PM (GMT 0)
hi.im a newby.ive only been diagnosed with crohns for 2 and half years but suspect its been around for a while longer.anyhoo im on methatrexate after taking azathioprine for a week before taking flu sympyoms.the meth has been stop start for a month but im worried about taking imunesuppresants being around kids alot(i take my daughter to toddlers and i pick up viruses alot)i was told by my GI that there was only limited options after these two drugs.imfliximab or an op.is imfliximab an imunesuppresant also or is it better than the previos meds mentioned.am also on 30mg predisolone and asacol to.i rattle like a smarties tube.hope to get a reply.ty
Posted 6/15/2009 10:31 PM (GMT 0)
"Rattle like a smarties tube". Most Americans won't get that one...

Remicade is an immunosupressant, so is Humira. Keep in mind that these are not the only drugs in this category. There is Cimzia, and a couple of others. If one doesn't work, one of the others might.
Personally, I'd rather be on one of these than Prednisone long term. I've had lots of issues from my short bursts of Prednisone, but no issues from Remicade.

I've been on Remicade since 2002, and I've not had any problems. I work at a university, and am around a lot of people. My son is 3 years old, and he is in pre-school, and he is around a lot of other sick kids. I do get the occasional cold, but no more than before I was on Remicade. It does help to pay close attention, wash hands a lot, get flu shots, vitamin C, etc.
Posted 6/26/2009 12:45 AM (GMT 0)
Hi guys! I as well have been on remicade for a year and 4 months. It no longer works for me. Though I've been reading some threads on here, currently not suffering to much with my CD only ending up in the hospital every 2 months with a flar up I am unable to handle. But I am suffering very much from arthitis. I've lost my life at 24.. unable to even open a bottle of water. I've been off of work for the last 2 years. I'm fustrated. I'm waiting for my apointment with my GI July 3rd and hopefuly she aggress to swtich me to Humira. Does anyone have any advice on how long I should feel some sort of relife of my arthitis with Humira? I would also love to start eating other things like milk which I no longer can have. I also can't gain any weight I've lost when I have my flar ups. Hope someone has advice for me how Humira
Posted 6/26/2009 5:55 PM (GMT 0)
Yellowfin...you are not alone...Me and my GI are stumped too...it is so frustrating. I hope that Humira works well for you. Alas, for me, it did nothing. I guess compared to 10mgs/kg every 6 weeks, the Humira was just not as strong. I'm currently doing Cimzia. However, it too is losing its effectiveness (it runs out at the start of the 3rd week).

Because of this, I've not been able to come totally off the prednisone. Can't seem to keep the symptoms in control long enough...

Oh RA&CD...I have to take sulfasalizine too...it took awhile, but the joint issues are soooo much better...have you tried this? What does your rheummy think of it?
Posted 6/26/2009 5:59 PM (GMT 0)
I have the same issue with remicade, it wasn't doing it's job at every 7 weeks so I ask to be brought down to every 4 weeks, which now my body is use to, remicade has no effect on me what so ever not for the arthitis nor for the crohn's. I haven't tried the med. I'm going to see a GP tomorrow for the pain until I see my GI I will ask him about it.. see what he says. I just want my life back! Thanks for the advice I'll let you know what he says!
Posted 6/26/2009 6:00 PM (GMT 0)
Oh btw they still haven't given me a rheummy doctor I'm still dealing with my GI for my arthitis!!! which is another very fustrating part. I will also ask to see one! Thanks again
xoxoxo
Posted 6/26/2009 6:08 PM (GMT 0)
I've never tried remicade but I've been on humira for 3 months now...it was a rocky start as I had unbelievable joint pain the first few weeks on the medication, also experienced flu like symtoms the first month as well...now after 3 months, I'm finally feeling like it has kicked in and I'm feeling better...I'm off cipro which I took prophalactically for my pouchitis and I'm down to 3mg on the entocort...after I get off that I'm hoping to stop the xifaxin...I've read where the drug can take 3 to 6 months to really help...I also have psoriasis but haven't seen that the humira has helped that much...hoping it will...good luck with humira...I for one finally see some light at the end of the tunnel!

Posted 6/26/2009 6:21 PM (GMT 0)
I hope Humira takes allot less time to work for me, as I am to the point I can not handle the pain anymore. I'm so happy to hear your getting better with Humira. The entocot they took me off after a few months on Remicade. I think my GI moved to fast taking me off allot of my meds. I'm so happy for you,that your seeing some sort of light. Much luck to you! xoxoxo
Posted 6/26/2009 6:26 PM (GMT 0)
RA&CD- This is only my experience with it....some people feel better right away with humira...unfortunately, I never respond that quickly to meds...I hope it helps you and you find the relief you are looking for....
Posted 6/26/2009 6:27 PM (GMT 0)
Yes, I went through that. I was on Remicade and had mild help with it but had a reaction to the antibodies and had to go off of it. I went on Humira and it was a miracle to me for 3 years. I led a nearly symptom free life and it was wonderful eating anything I wanted, almost no pain, no bleeding and no worrying about having to be near a bathroom all the time. I hope it works well for you. It is easy to do - so much easier than Remicade. I hope it works for you.
Posted 6/26/2009 6:38 PM (GMT 0)
Hi potatoqwn!
are you still currently taking Humira? or it stop working after 3 years? I hope I read wrong and your on it for 3 years and still working. I hope it does the same for me as it did for you. Thanks for the insight, makes me feel a little better, having hope there is actually something out there that may actually help! Thanks again xoxo
Posted 6/26/2009 6:39 PM (GMT 0)
I've been on Humera for almost 2-yrs now. It's just now loosing it's "oomph". My GI doc keeps telling me she's going to up the dosing from every other week to every week. Been on Prednisone since April and have been on Imuran for several years. Have also been off and on the Entocort several times over the past 2-years. I'm afraid that one day I'll have been on everything and nothing will work anymore. At any rate, if I remember correctly, the Humera took a good 6-months before I started noticing that it was helping. I wish you all good luck with the Humera. I haven't done the Remicade yet. Sounds like I probably shouldn't waste the time or money huh?
Posted 6/27/2009 2:18 AM (GMT 0)
Does anyone have advice on a type of pain killer that works for RA but doesn't make you feel like your 'high' or dizzy or feel sick? I want something I can take in the mean time of waiting for Humira but something I can take and still be able to to things. I have tired a few, all of which make me dizzy, sit on the couch for hours throwing up. (of course in my throw up bucket,I'm sure some of you have one if you have crohn's in the stomach, lol ;) I have my sister in-law stagette party, I know I am unable to drink but I would like to be able to move to even get there! I hope someone can give me advice
xoxo
Posted 6/27/2009 2:28 AM (GMT 0)
Hi RA&CD well I would love to tell you that Humira is still working for me, but it has just recently lost effectiveness. I am sad about that. I threw a whole pity party for a few days, but I am moving on. I would not trade in those wonderful 3 years for anything though. It was incredible to have that relief because before that I was in a constant 15 year unrelenting flare. It was miserable and Humira was the only thing that worked for me long term. I know we are all different though. I really hope it works well for you especially since you are dealing with RA too! Geez, why do some of us have to suffer so?

I am now on to try Cimzia........
Posted 6/27/2009 3:15 AM (GMT 0)
Hi potatoqwn
I am so so sorry to hear Humira stop working for you, I know the feeling for me with the Remicade.I'm glad to hear you had atleast 3 years of some sort of relief.It's just so horrible when you find something that works then just doesn't one day. I hope Cimzia works for you and that this is the last and final med for you. I hope humira works in a day for me, I am not sure how much longer I can handle the pain of the RA and CD. But I know there are people out there suffering as much or more then I. Thanks for your store, help allot! :)
Posted 6/27/2009 12:28 PM (GMT 0)
RA&CD-my rheumy gave me ultram for pain...haven't tried it yet but it's not supposed to make u feel drugged
Posted 6/27/2009 4:24 PM (GMT 0)
goldy3
Thanks for the advice, I ask the doc this morning, but he decided to try me on something else. I can't read his writing, but I'll let everyone know once i've taken one and how it works. He also suggest for the RA to take with Remicade.Methotrexate has anyone taken this? I've been reading up on this and it seems hard core, and side effects like crazy, it's actually a med they would give to cancer patience. And advice?!
Posted 6/28/2009 9:26 PM (GMT 0)
So I've ask my doc to give me something that wont make me feel sick. It turns out he gave me Tramacet. I was reading threw some threads on here, and supposly  people feel sick on this. I hope it works out for me, if not I'll go back to the doc and demand ultrame. Thanks for the advice again!
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