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Any hope for a cure?

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Crohn's Disease
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Posted 6/26/2009 10:31 PM (GMT 0)
Keeper, you make a very good point about the t-cells. if the cure opens up the door for everything you ever built a immunity to its almost no better in the long run.... pro's and con's
Posted 6/27/2009 1:12 AM (GMT 0)
I agree that the benefits would have to out weigh the risks. In some people that may very well be the case. In someone who isn't responding to any treatments, doesn't want to lose any more intestines, and is having very little quality of life. I wouldn't blame them for wanting to take on those risks.
Posted 6/27/2009 3:13 AM (GMT 0)
It says after 6 years most were doing well with little to no signs of Crohns. Would just hate to go thru that. It seems a bit scary and expensive for me!!
Posted 6/28/2009 7:06 PM (GMT 0)
I was wondering about aids today. I don't hear much about it these days. In the late 80's, early 90's, it really did use to be the big dreaded illness, much bigger than cancer, but things seem to have shifted back to cancer these days, now cancer is the big serious illness. But cancer offers me nothing, so I have never been all that fascinated by it.

I remember asking my g.i. doctor years ago about it all, when I was younger and much more curious. I asked alot, all the time, if they had any crohn's patients that had gotten aids?

My g.i. doctor would tell me yes, and when he told me that it sorta stuck. He also would tell me that his crohns patients with aids, no longer had crohns disease trouble, they were not necessarily cured, but about as close as one can get. They also would tell me that they thought the cure to crohns would be found right along side the cure to aids.

I still think alot about this, but I just don't hear much talk about aids like I used to.
Posted 6/28/2009 8:14 PM (GMT 0)
I never realized how bad I felt until I felt better!

I started LDN about 7 weeks ago, and I ave been doing better on this drug then I have on any other drug.

I will never take any immune supressants again.
My energy level, is wonderful, I have the gray film that I felt was over me, gone. I don't live in a painful fog!
The bloating is pretty much gone.
Even if LDN stopped working for the crohns symptoms, I will continue to take it for the energy and te all around "good" feeling.

I went from having 15 plus M's a day to 2

for about 6 weeks, I felt better nthen I have n 10 years....However,
this passed week, I ave been cramping a little then exploding.....once I explode I am fine.........BUT I attribute this to STRESS.

My son and his girl girl friend is expecting a baby any day....he lost his job..... have been helping them pay their bills...he know has decided to join the military, and my best friend has just been dx with AML. and is going through 24 /7 of chemo for 2 weeks!
SO I think even a normal person would have stomach cramps.
I am hoping when the stress gets better so will the cramps.

But LDN has been a God send for me!
I hope to never have to go of it.

gretchen
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