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Humira / Long-term Side affects/

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Posted 12/6/2009 9:40 AM (GMT 0)

 I am going to start Humira injections soon and have been reading so many posts about MS, spinal lesions, and  tingly numb limbs. Is this a more common side affect and if so, when did it show up? Anyone have any good reports about  this mecication? I could use some positive info.  turn  Also anyone have hair thinning on  this med. I am noticing this from 1 recent  remicade treatment and wonder if it will stop and if i will have it on humira too?? What next?

Posted 12/6/2009 1:11 PM (GMT 0)
I can't answer for you, but I'm sure someone will be along soon. I do know that there are several people using Humira and have been very happy with it's effectiveness on our disease.
I too wonder what the long term side effects of Humira are, as I may be on this in the short future.
Posted 12/6/2009 1:30 PM (GMT 0)
Hi I am on Humira I have no-side effects from the humira. Once a year a get a TB test
done and have a chest X-ray done.
Posted 12/6/2009 6:29 PM (GMT 0)
I've been on it almost 18 months and I haven't noticed any negative side effects. It doesn't work as well for me as remicade did, but it's pretty good.
Posted 12/7/2009 1:47 AM (GMT 0)
I've been on it since May of this year and the only real side effect I've noticed is that once I inject, I get really tired and sleepy. So, to alleviate that problem, I normally inject in the evening before bedtime. I am currently taking it every two weeks, but my doc said I may need to go to weekly injections. I was orginally diagnosed with Crohn's in Oct of 2007. I was on entocort, prednisone and another I can't remeber. Humira really helped me out with the problems I was having. Good luck and hope it goes well for you.
Posted 12/7/2009 3:01 AM (GMT 0)

Bear0422 said...
I've been on it since May of this year and the only real side effect I've noticed is that once I inject, I get really tired and sleepy. So, to alleviate that problem, I normally inject in the evening before bedtime. I am currently taking it every two weeks, but my doc said I may need to go to weekly injections. I was orginally diagnosed with Crohn's in Oct of 2007. I was on entocort, prednisone and another I can't remeber. Humira really helped me out with the problems I was having. Good luck and hope it goes well for you.

After I started taking it, my fatigue went away.
Posted 12/7/2009 3:14 AM (GMT 0)
I can't compare Humira to all the other Crohn's meds, as I'm allergic to the others. I've been on Humira since December 2008, and so far have no major side effects. I inject every other week, and sometimes for a day or two I get a little fatigued, a little achy, and freezing cold.

Although I had a resection in July (due to narrowed intestine with scarring), the Humira definitely helped heal the ulcerations.

Good luck!
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