Aches and pains?

leysa

Regular Member

Joined : Oct 2009

Posts : 111

Posted 7/14/2010 4:48 PM (GMT 0)

Hi everyone! :D

I'm due for my next loading dose of Remicade on Monday. I have no idea if this problem is linked to the Remi or not, but thought I'd ask.

I've been SUPER tired the last few days (like, if I lay down for any reason, I'm going to be out cold in the next 2 minutes), but the main problem is how badly my legs have been aching. They hurt ALL the time, and it's a constant achy I-have-been-running-15-miles-a-day kind of feeling. But....I haven't been doing anything that should be causing that. It's really starting to bother me. Is this tied to needing the next Remicade dose, or maybe Prednisone, or....??? I've been feeling pretty flared lately too, so I don't know if it all goes together. Ugh. Any insight?

Thanks!

ZenaWP

Veteran Member

Joined : Aug 2007

Posts : 884

Posted 7/14/2010 5:05 PM (GMT 0)

If you are tapering off of prednisone, that could be the reason you feel like that. Anytime we've tried to taper me in the past, we had to decrease in 1 mg increments or I would really feel it. But, we haven't been able to completely taper me off either...it always gets too bad once I get below 10 mg. Many people get joint pains and aches when tapering from that. But, Remicade can induce lupus, which could also make you feel like that. I would talk to your doctor...they may want to try slowing down the pred taper to see if that helps first and also watch to see if it gets better or worse after your Remicade infusions.

tulipg17

Regular Member

Joined : Jun 2010

Posts : 113

Posted 7/14/2010 10:45 PM (GMT 0)

I would get awful charlie horses when I would taper off prednisone. Joint pain in general in a common sympton of Crohn's (I have it a LOT) but since I have been on humira that has really decreased. I would think that Remicade would help that a lot too? I hope you feel better.

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