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Crohn's disease and blood clot / phlebitis risk

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Crohn's Disease
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Posted 10/4/2010 10:04 AM (GMT 0)
i guess im special.. i bleed more .. only clot was one that they caused changing a IV line in my neck. im more of a hemoragh type of guy..
Posted 10/5/2010 1:03 AM (GMT 0)
Interesting. Years of GIs, and seeing a hematologist on a regular basis, and no one has ever mentioned it. Matter of fact, I had one GI that would not treat me with Remicade unless I was on birth control! He did not think it was safe to be on with pregnancy (years ago, I guess before we knew it was 'okay').

I'll ask my GI and hematologist next time I see them.
Posted 10/5/2010 2:36 PM (GMT 0)
interesting how some drs know and some don't. My CD actually caused a stroke plus clotting other places. It was due to the increased inflamation along with the immobility I experienced for months at the time. The dr's I had at the time were oblivious (again this was more than 10 years ago) but I thought this info was current and out there for patients today. There was a medical journal written on my case the year it happened... apparently it was a big deal. Then I started meeting other patients and people who also had CD and clotting issues. SO it was just not listed as an issue- although it is definitiely happening.

I am amazed that this info is not out there. It really pays to be self-informed. Luckily when I switched dr's a few years ago she was well aware of this issue and recognizes the risks of clotting.

Be safe everyone

B
Posted 10/5/2010 8:15 PM (GMT 0)
I've been on the pill for many years. Not only for birth control (as all my doctors agree it would be risky for me to have another pregnancy). But also because I get painful ovarian cysts. Horrible migraines with every period, and almost always seem to have D problems then as well. I don't have periods anymore, I skip them with the pill.

I have talked about the risks with my GYN. Right now we feel the risk of clots don't outwiegh all my other problems. I mean with Crohn's we are at a higher risk for a lot of things. Doesn't mean that it is common though, doesn't mean that it will happen. It's good to know about them though. I wonder how much our risks are also increased because we tend to lay around in bed a lot when were sick. Or after surgery. Which is understandable, but maybe a good warning to try and get up when we can and move around!

I did have phlebitis one time, but that was only because a nurse pushed phenegren directly in to my IV by my hand. Not up higher in the line as they should. I think this is a bigger risk to us, as it seems to be pretty common!

Post Edited (Jen77) : 10/5/2010 2:18:29 PM (GMT-6)

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