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Posted 10/13/2010 8:07 PM (GMT 0)
I was wondering if there is a way to search for certain questions on this site with out having to click on every page?  I have a small bowel follow through test tomorrow and after that will discuss with my doctor about surgery.  I am at that point that nothing else is helping.  I always thought, to be talking about surgery I would be far worse off than what I am.  I am in constant pain, sometimes worse than others, and there are plenty of other symptoms (bloating, trapped gas (which is the worst ever- I'd rather have constant direha because the trapped gas is so bad) aches from my tummy to my back, etc), I have to take combo of tylenol and motrin every 4-6 hours,  but still I guess I thought I would be bed ridden to even think about surgery.  The doctor has talked about many med's to try and does not want to do this surgery because he said after the first resection the disease can come back and then you will experience problems.  He hasn't elaborated on it yet, but now I'm so worried.  I know people on here have talked about not only one but two surgeries and no complications (or none that I can remember).  I am trying to do some research on statistics and what the surgery entails and what to expect afterwards.

Thanks!

Posted 10/13/2010 8:12 PM (GMT 0)
Hi Sugar you can type key words into the search area above, and might be able to find posts you are looking for that way.

Now I do have to comment on one thing you said. You should NOT be taking Motrin for any reasons.  Motrin is a NSAID and can cause bleeding for us Crohnies.  We are only allowed Tylenol for over the counter pain meds, and prescripion meds must be mixed with Tylenol.   If you haven't tried other meds, I would suggest you give them a shot first.  Because with surgery you have to remember what they take out can not be replaced.  Hope that helps a little.  Hugs!
Posted 10/13/2010 8:16 PM (GMT 0)
Oh another thought, it could be possible also that you might have a bacterial overgrowth. That will cause you to feel gassy, bloated, with some pain. Its easily treated with a 10 day course of Cipro or Flagyl along with a good probiotic. Hugs!
Posted 10/13/2010 8:17 PM (GMT 0)
Thanks Nanners! I was just about to post that I had a "Duh" moment and found the area to do a search!
Posted 10/13/2010 8:22 PM (GMT 0)
Thanks so much...I didn't think I should be taking Motrin, but seriously nothing else was touching the pain. My brilliant GI doc didn't event tell me to stop taking it either! He did give me a prescription for Flagyl and prednisone to start taking after the sm bowel test tomorrow. He actually wanted me to take it before the test and I said "wouldn't that mess up the results?" so he said to take it after.
I really think I need a new GI doc, but seriously there is only one other in this area and he is soon to retire.

I have started taking a probiotic but it's a generic one...will have to research that also.
Posted 10/13/2010 9:09 PM (GMT 0)
normally , you're not supposed t take ibuprofen as crohnnie .. esp for pain.

But, I get advised to take ibuprofen when I have a severe acute arthritis flare-up (crohn's induced). yes there are risks but the only other option is prednisone, which also comes with a lot o baggage. for arthritis it's given every 6h for 10 days to reduce inflammation.

ymmv.

But for pain, I would not take the risk/ perhaps your doc could presribe tylenol 3's or similar for breakthrough pain ?
Posted 10/13/2010 10:43 PM (GMT 0)
I would try other Crohns meds b4 surgery unless they confirmed that it is scar tissue which will not heal.
For some surgery has worked wonders and for others like me my crohns was back after a few months.
It's a tough decision but I would give other meds a try first.
Good luck in your decision and I hope you find relief soon.
Posted 10/15/2010 8:12 PM (GMT 0)
Thanks everyone! I had my small bowl follow series yesterday. The doctor reading the xray advised that my chrones on a scale from 1-10 was a 10 (meaning how much it has progressed since last year at this same time when I had the test). He then said that a 10 would mean blockage and it wasn't there yet. When the doctor was first talking to me he said that there was a mass on my upper abdomen. I, needless to say, was shocked. I now have something else to worry about. He said he didn't know what it was that it may even be a pocket filled with liquid. My GI is out of the office until Wednesday next week, so I have to wait until then to speak to him (my next appt is scheduled for Nov 2). I am calling my regular doctor on Monday to advise of all that has happened. My GI prescribed Prednisone and Flagyl to start taking after the sm bowl test, so I started that today. I'm sure that will give me some relief until we figure out what to do. I'm sure (at least I hope he does this) he will want a MRI or cat scan to see what that mass is.
Thanks for all your responses, it means a lot to have this site and to have people to talk to who get it! The young girl who was taking the xrays has ulcerative colitis and has had her colon removed, so she really understood where I was coming from and was very nice and supportive.
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