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Feeling low - support please

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Crohn's Disease
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Posted 10/21/2010 11:53 AM (GMT 0)
I know in the great scheme of things I'm not that bad and there are a lot of people with a lot worse things to complain about BUT

I have got to the point where I am struggling.   I had about 30cm of small bowel removed on 13th Sept and was discharged from hospital 6 days later, great. Twelve days later I am back in with a pelvic infection, another week in hospital and a very uncomfortable drain fitted plus bombardment of antibiotics.Four days after being discharged I had a CT which was clear and the drain was (ouch) removed.  Great I thought I can start the recovery process.  Wrong, two days later I am back in hospital with chest pains.  Once they ruled out a heart attack they thought I had a blood clot which they treated me for.  I have never felt so ill in all my life, my heart rate was through the roof but blood pressure in my boots.  Anyway after lots of tests they found I had inflamation of the fluid around my heart - not a life threatening amount and no treatment except rest and anti inflamatories (which the gastro guys said I cannot take) and will take about 4 weeks to clear up.  So here I am at home again, everything I do wipes me out (taking a shower is like a marathon) and everything I eat is still rushing through almost as quick as I eat it.  I feel so low in myself and just cannot imagine ever feeling well again and today I am really tearful -stupid.

Sorry to be so negative but can't see past it at the moment, if anyone has been through similar please tell me this will improve - I am desperate for support and hugs.  Family are very good but they have no idea how stressful, scarey and painful this whole thing has been.

Thanks    

Posted 10/21/2010 12:11 PM (GMT 0)
Hi Missnuts,
I sure feel your pain and understand how you are feeling. I just posted a similar post on the ostomy board as I also have an ileostomy as well as crohns/colitis and Rhuematoid Arthritis. But what you are feeling is completely normal and you have every right to be down, you have had a lot to deal with lately and I know from experience that it really feels like things will not improve, but seriously they do. I can't say how long it will take before you feel on top of things but honestly you will in time. All I can say is please hang in there and I would be only too happy to chat with you any time you feel like venting. I too have wonderful family and friends but they don't understand what we go through on a day to day basis and seem to think that once our surgery is over we are ok, but theres a lot to get your head around at times too. Take care and feel free to contact me if you like, my email address should be in my profile.
Lots of ((((((((HUGS)))))))) for you
Doreen
Posted 10/21/2010 1:21 PM (GMT 0)
You have been through the wringer! I hope your recovery now goes smoothly with no more bumps and that you regain your strength quickly. Hang in there, it will hopefully get better soon. I think it's very normal to get down when you've had one thing after another scary thing happen. Just take it one day at a time, and if you look back every week, hopefully you'll see that each day you've seen some improvement.

((Hugs))
PV
Posted 10/21/2010 1:28 PM (GMT 0)
Missnuts you have been thru quite alot in just a short time. Be gentle with yourself, things will get better, but its going to take some time. Vent away to us, we all understand your suffering. Hoping you get feeling better very soon. Hugs~
Posted 10/21/2010 1:34 PM (GMT 0)
I'm posting to let you know I am thinking about you- you've had a rough patch and must be a tough cookie! Healing will come with time. Of course you are feeling low, and coming to this forum is a great way to share and see that others also understand the feeling. Sometimes, no matter how good family and friends are, no one truely understands except others who have had similar stories. I look forward to hearing more from you throughout your recovery. One day, and sometimes one minutes, at a time is all we can do. But things will improve... HUGS!!!

B
Posted 10/21/2010 1:41 PM (GMT 0)
Holy moly honey you have been thru alot. That post op crap is the worse, because everyone says you should be better in a couple of weeks and that is just freaking crap as far as I am concerned, as someone who has had alot of surgery I think it really takes about a year to get back to normal.
I would ask do you have a seat in your shower? Would it help if you did? Plus a hand shower sometimes helps too.
Posted 10/21/2010 3:55 PM (GMT 0)
Thanks so much everyone, it really helps to know that others have felt what you are going through and I know my probs are minor compared to some, but as I said it has been a bad day (most of it in the loo !!!) Tomorrow will be better - think positive.
Thanks guys your hugs have really helped.
xx
Posted 10/21/2010 4:10 PM (GMT 0)
Nah, those aren't minor problems. I've felt a whole lot more miserable over a whole lot less >.>

Hope you get better soon. *hugs* :p
Posted 10/21/2010 4:10 PM (GMT 0)
I'm so sorry you've been through so much!! Don't ever feel stupid because you are tearful either!! This is a rough time for you and you have every right to feel down! It's hard enough to recover from surgery when all goes well - much less to have all these new things thrown at you!!
Do whatever makes you feel best - and get some fun books or magazines to read in the bathroom :) A seat in the shower is also a great idea - I have one in my bathroom as well that I can sit on to dry my hair or put on makeup (when I feel up to that...)

I know it doesn't feel like it now, but things will get better!

Sending you lots of hugs and good thoughts!! And hope you start feeling better soon!!
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