pred withdrawal relapse

corn

New Member

Joined : May 2010

Posts : 12

Posted 11/8/2010 8:06 PM (GMT 0)

I have been on the dreaded prednisone for 7 months and had gotten down to 10 mg. for the last two months. Just finished my third Remicade treatment and my GI Doc decided I could go to 5 mg. without a problem. On the fourth day of doing this, I went to the ER in what I felt was another obstruction. The CT scan showed nothing. I did have an elevated white cell count of 15,ooo with 90% Neutrafil cells? He doesn't think this 5mg. drop could have caused all of this but????? Now back to 40 mg. for a few days and then 20 etc. HELP! During all of this I had severe bloating, severe reflux, nausea, and water diarrhea every 15 or 20 minutes. Still have the water diarrhea today but only every couple of hours. On liquids only.

ZenaWP

Veteran Member

Joined : Aug 2007

Posts : 884

Posted 11/8/2010 8:30 PM (GMT 0)

I'm on it for arthritis, not gut symptoms, but once I get down to 10 mg, I have to decrease 1 mg at a time or I really flare. We haven't been able to stay below 10 mg for long, though, without having to go back up to 10. In two months, I've been on it for 2 years straight. So, I don't know if it could have caused the elevated white count, but it definitely would really impact me to drop that quickly.

Ari12

Regular Member

Joined : Oct 2010

Posts : 157

Posted 11/8/2010 8:50 PM (GMT 0)

It is a terrible drug and I find it very difficult to taper off it as well. Anytime I drop down my stomach wants explode, I get a lot of cramps and discomfort, but this time I am determined to get off it for good. I will start my uphill climb next week when I go down to 20mg. Grrrr...

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