hello all!
It is so nice to read that there are others out there suffering the same thing you are. Makes me feel as though i am not going crazy.
I've had this darn thing for about 4 years now,and the last 3 months have been hell.
Right now i am waiting to go on Remacaid and am getting really tired of waiting. (Its all the friken paper work i am waiting for to see who will cover what) That stuff costs big bucks!!!!
I am hoping that by the end of next week i'll have an answer.
Been on all sorts of meds( of which one made me go mental, had to go to emerg. so i wouldn't kill myself)
I don't eat much because everything i do, makes me feel crapy. I've lost almost 16 pounds since thanksgiving (oct)
and i really can't afford to lose much more. I'm 108 and holding right now. I do eat salad, with shrimp or tuna in it. Chicken broth, miso soup and lately i;ve been ok, on hashbrowns and eggs. I only eat really small amounts when i do eat.
I can not eat, red meat, pork,dairy.( which bites cause i do love my cheese)
I am sort of scared about going on remicade, stupid me went on line and well i rather tend to panic quicky. And hints to mellow me out when the time comes??
I'm also turning into a germ a phobe. I don't want to leave my house, as i am scared that i am going to catch something and that will delay getting my meds, even longer. Grrrrrr.
Thanks for listening.
i