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do you ever feel like telling ppl to walk a mile in your shoes??

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Crohn's Disease
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Posted 12/14/2010 5:37 PM (GMT 0)
lol long walks off short piers...sala unfortunately there are fat crohnies too.
Posted 12/14/2010 6:35 PM (GMT 0)
ugh.  Feeling like this today!  Or for the last month or so...

My family mostly "gets" it.  Luckily my husband does 100% and is always very helpful and supportive, but work is just the worst!

I have so many snotty, snippy co-workers that all think I look fine, so I must be fine!  Lately I've just been trying to let it go...everyone

has their own problems and issues, and I can't make everyone understand where I'm coming from or my disease, but that is not always easy!!

I'm just exhausted today too and took yesterday off work because I was too wiped out to do anything....I do wish

people could feel how tired we crohnie's can get....just telling people I'm tired seems to get me blank eyed stares and "so whats?"

Posted 12/14/2010 7:01 PM (GMT 0)
I knew a gal who was a big solid atheletic type amazon. Strong attractive gal. I didn't see her for a while and when I did finally see her she had lost a ton of weight. It did not look good on her full frame and I feared she had been very ill. Not knowing how to broach the subject I said "You've lost a lot of weight" She just beamed and said thank you. I had to change my tone quickly from consolation to congratulations. I thought she was dying instead she was dieting......... Two edged sword I guess??????
Posted 12/14/2010 10:39 PM (GMT 0)
be careful cds1, I lost my job because nobody got it, I suffered for 5 years with that Co. the gas cramps, trying stand straight when all you want to do is bend over, too much pain to stand straight, the whole bathroom thing, it was a nightmare, everyday. usually within a five day work week, I would call in 4-6 per month, and times would have to leave early, or beg for no OT, so in a 5 day week, if I would have 2 decent days it was a great week

Posted 12/15/2010 1:37 AM (GMT 0)
It really is nice not having to worry about gaining weight all the time. The only time I worry is when I have to take the dreaded "P".

Now if I can stop the little skin viruses that upset my life due to the immunosuppressants I take I would be happy.
Posted 12/15/2010 2:46 PM (GMT 0)
artist guy - That is something that's always in the back of my mind! Luckily, my boss understands, or at least is understanding, so I feel like things are more secure with him in my corner. Everyone else can say/think what they want, but they don't really have any say over my job.
My husband and I always keep some money in savings just in case I did get let go, or had to go on sick leave - you never know what might happen!!
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