Anyone heard of or been/are on cyclosporine?

bella3250

Regular Member

Joined : Aug 2008

Posts : 351

Posted 1/7/2011 6:47 PM (GMT 0)

I was wondering if anyone has been on cyclosporine. My doc has thrown that out there as a possible treatment option for me. I've been reading about it and it sounds scary. Anyone have any advice or input about it? Thanks.

beave

Veteran Member

Joined : Mar 2007

Posts : 2455

Posted 1/7/2011 7:19 PM (GMT 0)

It's used more in UC than in Crohn's. In UC they sometimes use it as a rescue medication for somebody who is flaring badly and about to need a colectomy. It works fairly well in that situation but isn't really considered a long-term "maintenance" treatment.

For Crohn's, it's not used very often, but it could be considered if somebody has failed other meds (including remicade, humira, cimzia, etc).

sr5599

Veteran Member

Joined : Aug 2007

Posts : 1202

Posted 1/7/2011 7:54 PM (GMT 0)

I asked my doc about it, and I think he said what beave said about it not being considered a maintenance therapy. I am pretty sure (it's been a year since I asked) that he said it would be used to get me into remission, but something else would need to hold me in remission. I don't know much about it beyond that. I'd love to hear what you learn though!

Kiwi12

Regular Member

Joined : Aug 2010

Posts : 486

Posted 1/7/2011 9:56 PM (GMT 0)

I have been on it in the past but only short term and it certainly helped with no side effects to speak of - if your doc thinks if has merit for you I don't think it is any scarier than a lot of other drugs we try like humira, remicade etc and if it brings remission may be worth the risk. Good Luck :)

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