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Crohn's Disease
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Posted 1/22/2011 2:04 AM (GMT 0)
I think I need to have an indoor day, partly because I'm tired, and partly so that the piles of mess that are building up here don't suddenly develop territorial ambitions and start invading other countries or something tongue

Accomplished so far:

* showered and dressed
* eaten breakfast
* gone down the street and bought a cheap managerial week-to-a-view diary that I can use as a housekeeping / gardening diary, as I feel as if I'm starting to lose track of things here. \
* looked at the pet shop
* popped in to the op shop; popped out with a HUGE pile of Better Homes and Gardens magazines that I can read for inspiration (op shops are dangerous places!!)
* grabbed a few groceries


tlcs I'd like to do today:

* start using housekeeping diary
* tidy car
* start attacking piles of clutter
* start attacking piles of dishes
* attack ants
* attack outside messes
* church stuff? (I'm so far behind on this now that I feel like I'll never catch up eyes )
* paperwork
* laundry
* ironing
* hands, feet and legs
* make muffins?
* make more ice cream?
* cook the chicken I bought for yummy summery lunches
* contact some people, because I've been lax about that this month
* look at the magazines I bought (about the only thing I actually WANT to do)
* argh... that's enough. How about I just start instead of making lists???


I could do this, were it not for the fact that I have little energy and even less motivation...

Ivy.
Posted 1/22/2011 2:08 AM (GMT 0)
ps. Hang on, I just remembered that I made a housework checklist / scavenger hunt thingie for days when I'm feeling like this.

(rummages..... finds it)...

First up: find dishes that need washing. Easy enough.

bbs.

Ivy.
Posted 1/22/2011 2:16 AM (GMT 0)
Saturday Morning, It's still nighttime here. LOL! Looks like you pretty organized.
Posted 1/22/2011 2:20 AM (GMT 0)
Nah, I was just in a pretty bad way a year or two ago, and was so foggy and tired that I never knew where to start, so I started writing things down when I did do them, so I would know where to start when I was incapable of thinking clearly.

There are still times when the lists are helpful...
Posted 1/22/2011 2:21 AM (GMT 0)
Next: put away stuff on draining board.
Posted 1/22/2011 2:29 AM (GMT 0)
You know you are in serious trouble when you get as bad as I am. My tick for the day usually starts with 1. Make list. How bad is that????
Posted 1/22/2011 2:34 AM (GMT 0)
tongue

I don't know, I think that's always a good start. Otherwise, you'd be doing this:

turn

Next up: spend five minutes washing dishes.

My stomach wants lunch and my intestines don't. :-/ Not sure what to do about that.

Ivy.
Posted 1/22/2011 2:42 AM (GMT 0)
My stomach wants lunch and my intestines don't. :-/ Not sure what to do about that.

So, so familiar with that.

Sometimes I ignore my intestines and get lunch. Other times I have a few cups of tea (I know you said you can't drink too much tea, but replace with a substitute of your own, obviously..) and then get an extremely late lunch if they feel better.

You'll be glad to know I felt tired just reading your TLCs. I feel virtuous by association, not by doing any of the actual work <_<.
Posted 1/22/2011 2:47 AM (GMT 0)
LOL. I'm glad they help!

I think I might make some lunch, because if I don't eat I get really tired and crabby, and that just makes things worse. I agree with you about the cups of tea, btw: they do help sometimes.

I might just have some chicken & toast... maybe some avocado if my brain insists on having veg of some sort. I think it's *fibre* the intestines don't want: they're not rebelling at the thought of chicken and toast, anyway.

bbs.

Ivy.
Posted 1/22/2011 2:47 AM (GMT 0)
ps. I've done the five minutes of dishes.
Posted 1/22/2011 2:55 AM (GMT 0)
I have more energy if I go without food, but I'm just not in the mood for depriving myself of food atm, so I'm tending not to skip lunch or dinner.

Chicken and toast sounds nice. I should be a bit more adventurous/healthy for lunch. Have cereal most of the time, and when I don't have that I'm having refined carbs in some shape or form: muffin, roll, etc. (Usually white bread.)

Congrats on starting on the dishes :p

Edit: I'm off to bed now, or at least logging off for the night. Night, ivy. Good luck with that formidable list... >_>

Post Edited (NiceCupOfTea) : 1/21/2011 8:07:03 PM (GMT-7)

Posted 1/22/2011 4:52 AM (GMT 0)
Oh, faff.

I've swept the back porch. And now, it's another five minutes of dishes for me.

Whoever stole my motivation, I want it back, please.

Sleep well, NCOT.
Posted 1/22/2011 5:38 AM (GMT 0)
Five minutes of dishes: done.

And I"ve taken out the compost and spent five minutes tidying the kitchen benches, and done a wee bit of paperwork.

Next: gather up washing and throw it in the machine.

Apologies for the frequent posts. This is the only way I'm going to get anything done today.

Ivy.
Posted 1/22/2011 9:45 AM (GMT 0)
Well, no wonder I've been feeling so tired for the last 24 hours. My Humira wore off after exactly a week, as usual, and now de gut is playing up again. I'm glad I did my errands this morning, and didn't put off shopping etc for another day. I wish I could go to weekly injections, but the government won't allow it because of the expense. Oh well.

Apart from multiple trips to the loo, here's what I've done this afternoon

* start using housekeeping diary - no
* tidy car - yes
* start attacking piles of clutter - yes
* start attacking piles of dishes - yes!!!
* attack ants - yes (not that it has made much difference)
* attack outside messes - yes; some of them
* church stuff? (I'm so far behind on this now that I feel like I'll never catch up ) - ha. no.
* paperwork - quite a lot
* laundry - two loads washed and hung
* ironing - nope. Might do that tomorrow, while the cricket is on (sorry, God).
* hands, feet and legs - LOL. no...
* make muffins? - nope
* make more ice cream? - nope. And I'd better, because I ate a lot this afternoon
* cook the chicken I bought for yummy summery lunches - yes
* contact some people, because I've been lax about that this month - no
* look at the magazines I bought (about the only thing I actually WANT to do) - going to do that now. In bed.

Huge hugs to you, dear Choc. I've been thinking of you all day, and hope you have been able to get through today without too much heartache.

Thinking of you too, Becky. I hope you are feeling much better by the time you see this.

Ivy.
Posted 1/22/2011 9:49 AM (GMT 0)
ps. I'm a bit bummed because our community is having a huge regional working bee tomorrow to help with the flood clean-up and, much as I 'd love to go, I know I'd be wrecked by the time I'd driven to the affected area (half an hour away; maybe less) and would be totally useless with a shovel or the heavy scrubbing they're wanting people to do.

Bah. It's upsetting not being able to help, especially as so many people need it. Anyway.
Posted 1/22/2011 10:13 AM (GMT 0)
Thanks Ivy, i'm doing ok so far today but it is only 10am here! Me and mum talked about my dad abit last night and i think it helped. I shared memories of the good times, like chucking sweets in the cinema (dad did it) and laughing at norman wisdom films, singing along to chuck berry in teh car with it at full volume!! Mum did say that she didnt think he would be able to cope with my illness, so i guess its a blessing in disguise he isnt here to see it. I'd hate for him to let me down with it like the rest of my family.

Ivy, you ARE helping with the flood clean up, your looking after yourself which is going to mean you dont get sick and require someone to look after you! Which means another pair of hands to clean up.

No real TLC's today, just get through the day and go supermarket shopping. I'm now buying some of my own food as mum cant really afford to keep me in meat! xx
Posted 1/22/2011 3:35 PM (GMT 0)
Ivy I am tired just when I read your lists! I work full time, and thank God my hubby takes care of stuff at the house, I couldn't imagine doing the house stuff too. Just the thought of your chores, makes me tired. I think I prefer doing my job, as its more of a mind thing and less physical. Hugs to you!

My neighbor decided to have a party last night with a LIVE band, so I am utterly pooped today. Didn't sleep much lastnight and you all know what that does to a crohnies body. Not good, not good at all. I think we are going over to my sister in laws house today, so that shouldn't be too strenuous as we will just sit around and talk. But the thought of getting up and dressed is not a pleasant one. So that will be my goal today to get up and out.

Choc your Daddy sounded like a keeper. Hugs to you!
Posted 1/22/2011 4:31 PM (GMT 0)
Today is going ok, the grief and emotion is at the edge. I know its there but i'm keeping going. I am thinking i should go through the photos from dad's house and scan copies in. Not many of my friends have even seen my dad. I got a big boost this morning, my tickets for badminton horse trials arrived. Somehow it makes it way more real once you have the tickets in your hands.
Spent a fortune at the supermarket but i got loads of meat so i'm happy. Chicken leg for dinner, nom nom nom.
Posted 1/23/2011 12:50 AM (GMT 0)
*hugs to Choc* Least today is almost over now... :-/

I popped out to the supermarket today, to get the ingredients for tomorrow's dinner (Indian scrambled eggs with a selection of Indian breads). Had a coffee, bought a jigsaw puzzle with 25% off that I know my mum wants, drove home. My mum isn't here this evening, so I made dinner for me and my dad. Maybe it was just 'cos I was hungry, but I seriously enjoyed it: gnocchi (pan-fried in a bit of butter rather than boiled), baked beans topped with bits of cheese, a poached egg, and fried spam. I love fry-ups in all their forms. And this all went very well together. Small portions of everything too, so not as heavy as it sounds. Followed it up with a serving of rice pudding, which was rather bland (it wasn't home-made) but improved by the addition of jam.

Just love eating :p

Just don't love the results :-/

Bleurgh. Actually it's not as bad as it was yesterday (beef bournignon). Watched a film with my dad: Bunny Lake Goes Missing. It's a black and white '60s thriller/mystery. An enjoyable watch, and the build-up was cleverly done. Better that than the romantic pap my dad would have saddled me with otherwise! (Unusually for a man he's into rom coms and all that...)
Posted 1/23/2011 1:02 AM (GMT 0)
You seem like an excellent cook NCOT!
Posted 1/23/2011 1:20 AM (GMT 0)
Hey all!

I finally got the NG tube out this morning, an have gotten to have clear liquids today. I was SO excited when they brought me Diet Coke! Anyway, tomorrow I'll probably be able to eat some mushy food and maybe go home on Monday.

Ivy, as usual, I'm exhausted thinking about and reading all the things you've done today I'm impressed!

Choc, I'm glad you got to reminisce about your Dad. You definitely should't hold it all in. If you need to, have a good cry and don't try to hold it in.

Meds are kicking in, so I've gotta go.

Ttys!
Posted 1/23/2011 2:13 AM (GMT 0)
Test...

Edit: Phew, thought I had been banned :-/ Tried to post in another thread and a message came up saying I didn't have permission to post in this forum =/ Not sure what that was about.

@Endeavour - Thank you :p I'm not a bad cook, but I'm not an excellent one. Need more opportunities for cooking <_<. At least, proper cooking.

@Becky - Laters. Glad you seem to be on the mend and due home soon.

Post Edited (NiceCupOfTea) : 1/22/2011 7:20:10 PM (GMT-7)

Posted 1/23/2011 2:58 AM (GMT 0)
Rather than bump up two old TLC threads...

@Choc - As ivy said, you're a sweetheart. GI recommendations would be awesome, thank you >_>. And yes, I would try to get my medical records sent on, although, as every time I went to an appointment the doctor didn't seem to have any record of what the previous doctor before them said, I wouldn't have any hope that they would be even halfway complete.


@MMNavy - Thank you for your post, too - almost missed that one, as I nearly didn't check the thread! Personally I don't like the concept of CBT very much; it tends to get my back up, but I won't go into that here <_<. I still would give CBT a go, but only with somebody who was highly expert or acclaimed in that field. I suppose I'd be curious to see if that made any difference or not. Personally though I think you're right: I don't think I'm that well suited to CBT.
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