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So Yet Another Update

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Crohn's Disease
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Posted 3/30/2011 12:40 PM (GMT 0)
I swear one of these days I will be done with these updates. I'm as sick of being sick as I can possibly be!

After I was basically blown off by my surgeon's office late last week about the pain I am having. I called my GI's office on Monday. He called back at dinner time. He absolutely agreed that I should be having LESS pain every day, not MORE at this point in my recovery. He sent me off to have blood work done and flat Xray last night. 2 weeks ago my WBC was a bit high, so he's looking at that, and some other values were a bit off. Not sure other than huge glaring problem what he can tell from a regular Xray. Unfortunately, he's pretty sure he will be sending me for another CT. So that will probably be tomorrow by the time they get all the results in and get it scheduled. I just don't know how I can drink more of that contrast. I so want to feel better, but the thought of another cup of contrast sends me straight to the toilet to throw.

Also when they went to draw my blood it took 2 tries. I usually have great veins. They are small, but never do I have to be stuck more than once. For my last CT, it took 4 tries to get the IV in for the IV contrast. So I know I am dehydrated. I am drinking all I can, but I just can't seem to make any progress. I sort of wish they would give me a few bags of fluid to jump start me, but no one seems concerned with my dehydration except me.
Posted 3/30/2011 1:13 PM (GMT 0)
Try warm compresses on both arms in the area they like to "stick" the IV. Keep them warm w/a sweater or a leg warmer on the arms. They have to do a "stick" to give you any bags of fluids so .... fat lotta help that idea would be. *sigh*

In fact, now that I think of it, INSIST that they give you a couple of warm compresses for both arms BEFORE they attempt the "stick"! That really does help. Also they CAN give a tiny amount of novacaine or relative w/a tuberculin syrnge in the area BEFORE they do the "stick". I've had that done before when I was on IVs.
Posted 3/30/2011 1:19 PM (GMT 0)
Awwww, many gentle hugs to you!!
Posted 3/30/2011 2:07 PM (GMT 0)
Dang its really seems as if you are having a rough go of it. I am so sorry you are suffering so.

Everyone keeps talking to me about doing my knee replacements, but after that kidney surgery I am really surgery weary at this point. And I am sure you are there too:)

I just think as we get older, surgery just gets harder for us. Between the antibiotics, pain meds etc., I think we just have a harder time anymore.

Sending healing prayers your way. And gentle hugs too!
Posted 3/30/2011 7:08 PM (GMT 0)
That's what sucks about dehydration, the insurance companies doesn't recognize it as a reason to be in the hospital, even though a few bags of fluid can make the world of difference.

I wish you the best!
Posted 3/31/2011 4:04 AM (GMT 0)
I hear you on the desire to have the bags of fluid. I'm sure you are drinking plenty but not absorbing it plus having D does not help the matter. I also don't like were you explain to the doc a legitimate issue and you can tell that they don't realize it's important to you. Maybe because they are specialists they write off these complaints easier. It's a shame.

Hope you feel better and good luck with the ct scan beverage!
Posted 3/31/2011 4:47 AM (GMT 0)
I understand what you are going thru I think in the 1 year with my 4 surgeries I lost count but it was about 27 I think CT scans in the 12 month time frame because of my complications. I foud the best way to get that goo down is get a straw plug ur nose and chug (yes even ahd to do this to see if a NG tube was needed and it was needless to say it did all come back up)
Posted 3/31/2011 5:07 AM (GMT 0)
What a shame it is when you need your feet the most , thats when you feel the worse. Think of how much fun it would be to kick the surgeon in the butt if only you felt a little better. Just no justice in the world. I know your going to feel better soon though, hope I hope , and so send the surgeon an IOU. When you get to feeling better , show up at his, her office and say, " I feel better now, so here is that kick in the pants I owe you from last month." WACK,,,,now didn't that feel good ?
Posted 3/31/2011 2:02 PM (GMT 0)
I wish I could give my doctor a kick, but he's never in the office. That would be the surgeon who did the surgery. I have been dealing with my GI because the surgeon has been out of the office for the last 2 weeks. I would rather deal with my GI anyway because I like and trust him.

My blood work is surprisingly good all things considered. The flat Xray's still show some ileus or "colonic air fluid", but my GI doesn't know why. So off for another CT I go. Oh goody, a lovely vanilla barium shake for lunch today. My doctor thinks its inflammation not infection, but he doesn't know why. Thinking inflammation because my WBC is going down not up. The next step after the CT will be a C-scope unfortunately. I just have a feeling that this has something to do with what the surgeon did, ie the "mesh" that was put in to stop adhesions from forming, and I will end up with some sort of exploratory surgery before they are done. My pain is mostly at the site of the anastamosis but it isn't related to when I eat. It isn't crampy, doesn't come in waves like a blockage type pain. It is just a constant that gets worse with any form of activity, like walking to the bathroom!

I just hope something shows up soon so I can start some sort of treatment and start feeling better.

Off for some barium fun!
Posted 3/31/2011 2:22 PM (GMT 0)
Good luck Zanne!!
Posted 3/31/2011 2:38 PM (GMT 0)
I know how you could get him. Exploding golf balls... Gets em every time.
Posted 3/31/2011 3:10 PM (GMT 0)
i have yet to find something to make the pokes easier. I have been told many times that i have bad veins. I have tried the water, the heat, the leg warmers etc..and they still poke me a couple of times before they can get one. Its all the brusing that looks nasty afterwards.LOL Last time my whole hand was brused. It looked like i was in a horible fist fight. (Le Sigh) the things we put up with to make us better.

(Hugs to you and i wish i could make the pokes easier for you) turn

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