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Went to Emergency Room Last Night, and...Mono?

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Crohn's Disease
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Posted 6/24/2011 8:15 PM (GMT 0)
So after going insane with my migraines and other symptoms like fevers and red face and such, I decided to go to the Emergency Room because I'm on a waiting list to see a Neurologist.

So I go there, wait 3 hours before I see the doctor, you know, the typical ER visit. The wait would be worth it if there was news, I thought.

The doctor was contemplating giving me a CAT scan, but wanted to do blood tests first. So she looks in my ears and tells me I have a Sinus Infection because there is a lot of fluid in my ears.

She comes back an hour later with the results from my blood tests, and tells me that I not only have acute sinusitis, but I have Mononucleosis as well.

I'm really confused, because my primary doctor never tested me for Mono and people tell me that Mono infection can last for a very very long time depending on the person.

Is it possible that the lymphoid hyperplasia and all of that the doctor was seeing during my colonoscopy in my terminal ileum was because of Mono infection?

I'm gunna call my GI on monday when they are open, but I'm just curious if anyone has had this happen to them?
Posted 6/25/2011 12:54 AM (GMT 0)
I don't know, but take care of yourself. I had mono as a teenager and was pretty sick for quite a while.
Posted 6/25/2011 1:34 AM (GMT 0)
any tips and tricks on how to stay healthy?
Posted 6/25/2011 1:38 AM (GMT 0)
Mono is sometimes really hard to diagnose, and blood tests can be negative until the illness is pretty full-blown.  When I had it I had low grade fevers and headache daily for about 6 weeks before the huge swollen glands and sore throat came on.  That was when the blood test was finally conclusive.  I was 16 and slept like the dead for 10 days.

My daughter had it at age 7 and at first her DR diagnosed strep (her fast culture was +).  She didn't get better on antibiotics and kept on complaining about how tired she was, so we went back and she tested + for mono.  Her tiredness was gone within a week.

I don't know about the lymphoid hyperplasia - I think it's an odd coincidence that you had a scope while sick with mono and I'd be shocked if there was a lot of data about that, but let us know what your GI says!  Mono can knock you for a total loop, especially if you're an adult, and you might need to talk to your DR about liver function while taking your Crohn's meds and getting over this virus.

Posted 6/25/2011 1:44 AM (GMT 0)
well the only Crohn's med's I am on right now is Pentasa, i dont think that goes through the liver does it? I am on other meds though that obviously use the liver like anxiety meds so I will definitely schedule an appointment to see him.

the glands just started getting swollen in my neck about 2 weeks ago. it's weird. haha. they weren't swollen and stuff in the beginning when all my weird medical stuff started.

my doctor hasn't officially diagnosed me with Crohn's, I have a capsule endoscopy soon. he thinks the inflammation was brought on my something else, because 2 crohns blood tests were negative.
Posted 6/25/2011 8:33 AM (GMT 0)
I don't want to worry you but when I had Mono as a teenager (18) I ended up in the hospital for 2 weeks (they would never do that now) with almost 104 temp. I was out of commission for almost 6 months and confined to my bedroom where I barely got out of bed. I had my blood checked almost every week CBC with Diff to see if I was getting better.. it also enlarged my liver at the time. Fortunately I took care of myself and now there is no trace at all of the Epstein-Barre virus.
NY VEGGIE
Posted 6/25/2011 3:42 PM (GMT 0)
what should I do to take care of myself?
Posted 6/25/2011 4:18 PM (GMT 0)
get a lot of rest. If you are having lots of swelling in your throat you might talk to your DR about steroids, that was how they treated my daughter. But given your Crohn's, that might be a more complicated decision.
Posted 6/26/2011 12:00 AM (GMT 0)
hm. well i have to make an appointment to see both my GI and my primary
Posted 6/26/2011 4:04 AM (GMT 0)
I had it last year granted the mono test came back neg since it needs an incubation period in you before showing as a pos...My primary doc saw the ER did strep tests, and mono so he decided to do the Epstein Barr test and mine was elevated he said it may not have been mono I had but I had an EBV flare of some sort (this also occured during a belly flare and I was on the medrol dose pack at the time with 103 degree fevers from the EBV
Posted 6/26/2011 1:25 PM (GMT 0)
When I had it some 30 years ago, the doctor told me to get bedrest for as long as I was tired, which was about a week and he also gave me some multi vitamins. I've recently heard of people being put on steroids for mono b/c their spleen was enlarged. It was a good idea to make an apt with your PCP and GI doc. Get plenty of rest and fluids.
Posted 6/26/2011 7:43 PM (GMT 0)
i've been reading lots of horror stories about it, and i keep hearing doctors don't take the virus seriously. i'm nervous. haha
Posted 6/28/2011 8:42 AM (GMT 0)
It'a important that you keep your immune system in top shape so it can fight the virus.. I would take extra Vitamin D3, a good multi-vit. Eat light, sleep A LOT, drink a lot of chamomile tea or decaf, did I mention SLEEP??!!!

It is also highly communicable by body fluids so it's important that you clean up well after yourself and don't get too close to anyone.. seriously!!
The reason that Drs don't take it all that seriously is because usually it is quite harmless and goes away.. I've never heard of anyone dying from it. BUT on the other hand many Drs have tried to link difficult illnesses like chronic fatigue syndrome and some others to the epstein-barre virus and mono. But no one has been able to prove anything.
NY VEGGIE
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