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Kidney Stones!!

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Crohn's Disease
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Posted 6/25/2011 4:54 AM (GMT 0)
Hey Everyone. I know this isn't completely Crohn's related but how many others have suffered from kidney stones?? I just passed my third and seriously, this pain is terrible. I have had a CT done already, and next week I have an ultrasound and a cystoscopy. Until then, I am not sure what to do! Is there anything that can help the pain????

I am passing a lot of blood, and they tested my urine and said that while blood was present they are more concerned about an infection from the passing stone. Has anyone here ever had an infection from kidney stones? Also, I am wondering what is causing these stones. Since I was diagnosed with Osteoporosis, I have been taking calcium citrate, and I know calcium can be a major cause.

Any help would be much appreciated smilewinkgrin
Posted 6/25/2011 5:04 AM (GMT 0)
I have had 3 stones since I was 17. the last two I just dealt with it, I had some lortab that I would take sparingly (it causes my spasms to hurt lots worse). the stones hurt lots, but heating pads can do wonders. I didnt have any infections with any of them, so not much help there. get feeling better!!
Posted 6/25/2011 5:10 AM (GMT 0)
Ah thanks so much for the heat tip, I have a bean bag (microwave kind) but I wasn't sure if it would help or not. I really hope I am done passing them, but thanks :)
Posted 6/25/2011 3:59 PM (GMT 0)
I know that Sniper has had issues with stones, and other members have suffered with them too. They can be from calcium or uric acid. Sorry you are suffering so. Hugs~!
Posted 6/25/2011 4:59 PM (GMT 0)
I have had a few. I only get them when my Crohn's is active. I think it is another thing we are more prone to because of this disease.

Heating pads and warm baths always helped me.
Posted 6/25/2011 9:06 PM (GMT 0)
I only get them when my Crohn's is active.

Kidney stones are some of the extraintestinal lesions (EIL) that can be complications of IBD. The most common EIL is arthritis which is found in 25 percent of patients. Skin lesions are in 15 percent of patients. Serious liver disease affects about 5 percent. Other EILs are serious eye inflammation, kidney stones, and gallstones. Stunted growth in children.

During my last flare I suffered with the crippling arthritis, eye inflammation, and skin lesions. But those symptoms quickly disappeared when my flare ended.

I have heard that vitamin C, magnesium, and B vitamins esp. B6 are helpful for preventing kidney stones. But please don't just take my word for it, ask your doctor or research it on your own.

Post Edited (BabeintheWoods) : 6/25/2011 3:12:38 PM (GMT-6)

Posted 6/26/2011 2:45 AM (GMT 0)
i've had about 10 stones!!!!! i feel like i'm a pro -- and they definitely ARE crohn's related. i have been able to pass them all and have not had any infections- the blood is normal with stones- in fact that's how i know one is coming sometimes. i'm so used to them i don't even go to the ER anymore unless they are real bad. i have percocets for the pain from my crohn's so i just drink a ton of water and try to pass them. not many docs will tell you this, but beer and lemonade help dissolve the stones and keep new ones from forming. i've had 3 different er docs tell me this on the sly. of course be careful cause neither are good for our guts dealing with crohns...
Posted 6/26/2011 3:05 AM (GMT 0)
Oh my goodness! 10 is terrible! Yea I am trying to keep out of the ER for sure, I am there enough on crohn's business. Thanks for the lemonade and beer tip, very interesting!
Posted 6/26/2011 6:34 AM (GMT 0)
yeah crazy huh? my mom had one years and years ago and they told her the same thing...i figure the ER is always the same- as long as i can pass the stone i'll try to avoid- although the morphine they give you when you just mention the stones is nice- funny story- the 1st stone i had (well 2nd, but the 1st was years before and i had no clue what happened...) it was about 3 am and we had a new baby...i didn't want to have to have the wife drive me and wake up our baby- i thought my appendix burst or it was a stone or something- anyway i got in the car, doubled over, couldn't breath, worst pain ever- get about 3-4 miles down the road and the car runs out of gas...3 in the am and i'm doubled over at the gas pump trying not to bawl like a little baby- can't believe i even made it there driving...
Posted 6/26/2011 7:06 AM (GMT 0)
hah the ER is for sure always the same and I will avoid it at all costs. My doctor gave me a lovely cocktail of dilaudid and zofran to pass the stones at home, but honestly they still hurt!

Oh man, I cannot believe you ran out of gas that is literally the crappiest of luck. I felt sorry for myself because on Wednesday night I fell down the stairs while passing a stone (the meds were upstairs, bad idea!!) but your story tops mine for sure. I have noooo idea how you drove yourself, that takes some bravery. Nice of you to take the wife and baby into consideration though, although you definitely paid greatly for it :(!

Thanks for the tips and hopefully you will not have any more stones in your future!
Posted 6/27/2011 6:12 AM (GMT 0)
likewise!
Posted 6/27/2011 12:14 PM (GMT 0)
I quit counting at 22 but have had more than that . 2 per month for a while. Mostly uric acid stones . Had them mostly under control with Alopurinol until I was put on Azothioprine and could not take the two drugs together . Once off of Alop. went back to having stones. Talked doc into changing me to Methotrexate so I could go back to Alop. Thank god for that change. For a while there when i would go to the ER I was like Norm on Cheers. All the ER staff knew me and knew why I was there . I learned to handle them at home but an infusion of saline helps pass them much easier so I advise you to do the ER . By the way , when you drive yourself to the ER they dont want you to drive home because they give you pain meds . You can get around that by signing a release but make sure the med has worn off first. I had trouble with this a few times when my wife was in the hospital and could not drive me. Also if you cant pass the stone in two days make sure you go to the ER. Once a kidney is stressed past a certain point it shuts down and there is no guarantee that it will start functions again. I almost lost one like that. Dont do what I did and throw them away. Had I kept mine , by now I could have paved the patio .
Posted 6/27/2011 3:34 PM (GMT 0)
Oh, I do remember something else. With my 2nd stone I had peed a lot of blood just as my kidneys started hurting. I recognized the pain and knew it was a kidney stone. I called my midwife (I was pregnant at the time) and they didn't believe me for 5 days until the ultrasound showed a stone. It passed the next day. Dr's aren't much help some times, that's why I self treated.

We had my first stone tested and it was a calcium stone (the most common type). The urologist gave me a diet I was to follow, and I know limiting the amount strawberries was part of it (I have the paper some where with all the foods I am supposed to eat in a limited amount, but it doesn't matter much since I can't eat most of the things on the list anymore) He also told me to drink 1 quart of pure lemonade a day (crystal light and other powdered stuff doesn't contain the properties needed to break up the stones) so if you have a juicer, squeezing your own juice is the way to go.
Posted 6/27/2011 4:00 PM (GMT 0)
When my grandmother was in a nursing home after having an anuerism (sp?) burst, she was unable to do anything but blink her eyes. She had a feeding tube, because she suffered from horrible kidney stones almost twice a month for three years. My mom started putting one or two tablespoons of pure lemon juice into the tube (not sure how often). She stopped having the stones altogether and lived for about 5 more years without any. Don't know if this really works but, a doctor just mentioned it to mom on the side. Ya know natural remedies are looked upon as things to be kept away from consumers....those pharma companies need their money!





That which does not kill me, makes me stronger, I should be IRON Man about now!
Posted 6/28/2011 3:47 AM (GMT 0)
Cranberry juice helps kidney health too. The fact that it taste better than meds is a big plus too.
Posted 6/28/2011 8:31 AM (GMT 0)
my stones typically look like the business end of those midevil weapons with the spiked ball on the chain...insane looking!
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