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what is remission in crohns?????

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Posted 7/2/2011 6:32 PM (GMT 0)
hey everyone....ive been battling crohns colitis symptoms for almost 3 years...symptoms go up and down. Who knows what the real meaning of remission is??? some of you have have so many more years of experience than me in dealing with this tricky disease. im trying to figure out if there is stages to it, or if remission comes on slowley and then tapers off and disapears completely...how do you know if your going into remission...i feel as if im on a rollercoaster....
Posted 7/2/2011 6:36 PM (GMT 0)
You will start to feel a little more normal. Its still not going to be perfect, but better. You will have more good days than bad. Hope that helps some. Hoping I can get back there soon. Hugs!
Posted 7/2/2011 8:43 PM (GMT 0)
Hi I have been in remission for over 5 years with the help of Humira.
I live pretty much a normal life. I will always remember that I have this illness.
Posted 7/3/2011 12:51 AM (GMT 0)
My Dr has declared me to be in remission. he went by my blood work(CBC, iron..etc) and how I was feeling. I will never be what other people consider normal but I am back to normal for me. If nothing else this disease has taught me to really listen to my body and be in tune with what is going on.
Posted 7/3/2011 8:39 AM (GMT 0)
I consider it remission if I have lots more good days than bad days and can forget about the hospital always being in the back of my mind for a little bit, probably too much food and dancing. Its hard to be the quiet one when everyone else is have ingfun,. I have had meals I should not have, that cause some minor distress, but they were worth it. When you haven't had your favorie steak for a year, its time to splurge, even if you know you will be in pain tomorrow,When you are feeling good make plans and do them.When you afe feeling good, make planes that can have some accommodation for you if you are feelin sick. Ski for everyone,Tubing for you, then gently shopping and reading for you. Everyone meets yp for the evening and there is lots to tell.
Posted 7/3/2011 6:14 PM (GMT 0)
i am not really sure..When i think i am, blamo it's back.
Posted 7/7/2011 4:14 PM (GMT 0)

To me, is when you are able to forget the disease for days (although not forgetting the medicines!), make plans and deal with only minor simptoms.

I'm currently "almost" in that stafe and can't complain.

But there were times when my doc said I was in remission and I didn't feel it at all.

Posted 7/7/2011 5:24 PM (GMT 0)
For me, it is virtually 100% sympton free. More energy than I felt in years. Very few off days and the off days are really not that bad (like a weak flu). I have had about 15 off days in the last 6 months.

Taking less meds and still being very very careful with what I eat. I am in remmission right now but there are tons of foods that I do not eat and I am just finally getting off entocort (about 1 more week, then finished).

Dave

Posted 7/8/2011 1:21 PM (GMT 0)
I look at remission in stages. For me, full remission means I am just maintaining my usual meds and I have normal activites of daily living. Of course my definition of normal has changed since i was dx'd over 20 years ago. If I go several weeks without sprinting to the potty and no gut pain and no major skin or joint issues, that is remission to me.
Partial remission is when I go without pain and repurcussions for several days.
According to my GIs definition of remission, I have been in it virtual all of my 20 years post rupture. He looks at remission as no active disease in the gut. But he is great to know that there are other effects of the disease. he just considers my CD in remission and my shortened gut as my new issue.
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