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Crohn's Disease
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Posted 7/28/2011 10:54 PM (GMT 0)
Hi everyone. It's been a while since I've been on here I but I've always gotten help on here.I changed jbs back in Jan of this year and for the most part I,ve been symptom free. I stopped tysabri about 2 years back and since I've been on no medication.
Fast forward to last week. The cramping started back up, mainly due to gas, and as with my last flare I started getting painful Aphthous ulcers throughout my mouth. The isuance I have is so unbelievelby crappy that my plan was to wait till I had a year in with the company and the awesome insurance starts (Jan2012) before I seek out a new gastro.
Does anyone have any home remedy that helps with these ulcers? Or any suggestions. thanks!
Posted 7/29/2011 4:43 PM (GMT 0)
I get them super bad, I have this stuff you rinse with and spit out, it has the stuff that numbs your mouth,(too lazy to get up and go look, and my sleep wasn't good last nite, so excuse my being a little stupid this morning, anyway it's just temp. stuff that stops the hurting just long enough to eat, I get them on my tongue as well, so I use that stuff for my tongue more than cankers. pred. will take flare right down in your mouth. it's cheap drug without ins. I filled my scrip of 30 pills with no ins. for like 10 bucks. but the true healing of those cankers is from inside, biplogics I've found is the only thing that stops them from reoccurring, I use imuran, and asacol for my gut, along with 10mg's of pred, and pain med's. I have cd in esoph. and throat, along with cankers and tongue, only at flares, my original site naturally is sm. bow. only, no where else, until 1992, I had resection in 1990, and then the next big flare came in my esoph. that's how it's been since. that doesn't count crampy flares at resected site, kinda like gas blockage. right now I have alot of it under control, so it's getting evan with me and going for my joints, I can't do any work without pain med's because of cd arthritis. my personal opinion, crohn's has a darn brain, and it waits, very premeditated.

AG
Posted 7/30/2011 8:51 AM (GMT 0)
I have switched to a toothpaste that doesn't contain sodium laureth sulfate (SLS) and cannot believe the improvement in my oral symptoms.

I haven't had a proper mouth ulcer for ages.
My constant sore throat has gone.
My constant tender lymph nodes under the jaw have gone.
My constant oral thrush is gone.

Obviously, your ulcers are likely to be disease-related, and a switch in personal care products is unlikely to cure you, but it's possible it might help.

This is the toothpaste I use:

http://www.langtoninfo.co.uk/showitem.aspx?isbn=4001638098045&loc=AUD

Salty gargles might help too.

Much sympathy to you. Those symptoms are so hard to put up with, especially when you have to deal with both bottom and top at once :-(.

Ivy.
Posted 7/30/2011 1:02 PM (GMT 0)
I agree holy with Ivy, once they're in that area, pred is the only thing that takes flare down, fast.

AG
Posted 7/30/2011 2:37 PM (GMT 0)
Maybe you could get in with a family doc and get put on some Pred (cheap med) and possibly some kind of mouth rinse. You really need to start treating this flare quickly or its just going to get worse. Maybe even talk about a cheap maintenance med to use. With this disease you really need to be treating it at all times or things like this are going to happen or worse. Thats what happened to me, but mine ended with emergency surgery, and I do not want that for you.

Maybe for now some Pred will be enough to quiet it back down until your insurance starts in January?? I had that happen in the past. Good luck to you, it always hurts me when I see members who are sick and are unable to get medical care when needed. Good luck and hugs!!
Posted 7/31/2011 1:36 AM (GMT 0)
I agree with nanner's as well, you have to treat it medically at all times, we're old timers and old timers always learn the hard way, by multiple surgeries, or lots of complications. So always treat your cd with med's, really, as you get older, it will just get worse. the older you are the harder it is to bounce back from surgeries, evan bad flare's.

AG
Posted 7/31/2011 4:18 AM (GMT 0)
Well Monday morning I'm going to call my primary physician and see if I can't get an appointment. I'll see if he can do anything for me and at the same time try to get a referral to a new gi a little closer to home. Work yesterday just took every bit of energy I had and the cramping just seems tone getting worse. Thanks for the advice
Posted 7/31/2011 4:22 AM (GMT 0)
Good to see you around again Mac. Sorry you have troubles though. I have real He!! with ulcers in my mouth and throat but they come and go so I have no real answers for you except see your doc.
Posted 7/31/2011 11:36 PM (GMT 0)
The last round of ulcers I had weren't too bad, Glyoxide (sp) swished a few times a day seemed to help greatly. Also, I realized I have to avoid yummy things like milk chocolate it really aggravates the ulcers. My PCP gave me a rinse a while back I think it was called Swish. Hope you get some relief.
Posted 8/1/2011 3:26 PM (GMT 0)
Oracort is a dental steroid paste to apply to mouth sores/ulcers. Really helps heal quickly too.

Hope they get better soon!
Posted 8/4/2011 8:28 PM (GMT 0)
Well I was able to get an appointment yesterday and thankfully was able to talk him into giving me some pred (7day course) so I can at least eat, lost 15 pounds in a little over two weeks. He has refered me to a gastro center in Columbus Ohio for the middle of August so we'll see how it goes from there.
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