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venting..looking for some encouraging words :-/

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Crohn's Disease
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Posted 10/4/2011 6:54 PM (GMT 0)
confused  Thanks for taking a minute to read this. I dont usually post on here. For the most part just reading what other people have to say helps me get through the day and feel better about what nonsense is going on with my body. But today i would just like to know how some of you feel. Its hard to deal this sometimes because people in my every day life dont understand it, especially at work. Do any of you ever feel like youre going crazy?! Like one day you feel great and are energized and feel like maybe youre getting back to yourself and then the next day is a "just kidding" kinda day where youre back to the same old pain and tiredness and all the other joyous nonsense that goes along with this lovely disease? Every time i have a couple good days in a row i find myself hoping maybe this time itll really be over and then it just comes back and slaps me in the face. I am so tired and nauseaus and feverish today and am watching the clock tick until i can go home and crawl into bed. I have no energy. Ive been sleeping like crap for the last 2 weeks because the pain in my side makes it difficult to get comfortable. all i eat is chicken soup and even that makes me sick. I am usually really strong about the whole thing but after a while i can only take so much. The whole back and forth crap and the unpredictability is killing me. Its extremely emotionally draining and today i just want to curl up in a ball and cry. Im sorry for the word vomit but sometimes we all need a little support and today just happens to be my day. Thanks again for reading this and taking time out of your day to help me out.
Posted 10/4/2011 7:35 PM (GMT 0)
"Every time i have a couple good days in a row i find myself hoping maybe this time itll really be over and then it just comes back and slaps me in the face. "

This sentence is me. My flares tend to be good week, bad couple of days, good week, bad couple of days. I try to talk myself into believing that my body is taking care of it...maybe it wasn't really a flare...maybe something I ate...maybe something going around. I'm having a good week again, so everything must be better.

Then, reality cramps back in. Oh man, I need to call the doctor. I should get in to see her. Have some blood work done. Get my meds adjusted, if necessary.
Posted 10/4/2011 8:13 PM (GMT 0)
Completely understand how you feel I've felt like this daily for about 4 months it really is hard, but sometimes just saying it and knowing others understand help us carry on

I'm sorry you're going through a tough time :(
Posted 10/4/2011 8:19 PM (GMT 0)
I understand how your feeling too, and have the same feelings that my work just dont care as long as the work gets done and im in work on time in the mornings, if only they knew the stuff that I have to go through at times just to get up in the morning.

I have been feeling rough now for the past 4mths and only went I went to see a consultant about a hernia operation did he say to me that its possible that I have been having mini flare ups!!

Im generally in bed by 7, 8 at the latest due to having lack of energy, or no energy at all but at times i just take my tramadol and plod on.

A problem shared it a problem halved, chin up petal - we are all behind you and with you on this one.
Posted 10/4/2011 9:33 PM (GMT 0)
I am so sorry that you are having a rough time, we are your Chron's family and we all share your pain, and are here for you. We have a challenging Disease that challenges each one of us every day.

What helps me when I am on this roller coaster of feeling ok in the am and quite sick by afternoon and then good/bad again, I feel ok I had a good am. I do my best to think that tomorrow will be a better day. This helps keep me focused, and this is what I've been trying to do for the past 1 1/2 years.

Hugs to all you wonderful people that is just trying to feel better

Vicki
Posted 10/4/2011 9:53 PM (GMT 0)
Thank you so much for your replies. Its the support and stories from people like you that gets me through the bad times! I'm pretty sure I would've lost my sanity already had I not found this. Everytime something weird happens with my body I check here and sure enough every time someone else has experienced it. I've been dealing with alot of confusion, blurred vision, slurred speech and disorientation lately. I don't know if I am low on b12 or what but I sit at my desk and literally cannot think or function. Even one of my customers asked me why I was slurring. It's scary. I'm only 25 and I feel like I'm 90 between the memory loss and body pain. But I am trying to keep my chin up. That's always been my motto! I'm just really thankful that I have people to turn to who know what I'm talking about because even my family and friends dont understand it.
Posted 10/4/2011 10:23 PM (GMT 0)
SL24, hang in there, this is a great place that we get to talk about our feelings, our pains and our questions to one another. We are trying to work through this each day. We are here to support you, and pick you up when you are down.

Sending hugs and encouragement!
Posted 10/4/2011 11:38 PM (GMT 0)
Honey please visit more often. Most of us feel just like you, and that in itself helps to know you're not
alone, and why the apology for the word vomit, that's a word in all our vocabulary:) Hugs
Posted 10/5/2011 6:25 PM (GMT 0)
You are not alone. We are all in the same boat. Hadn't it been for this forum and the support we give each other, I would have gone nuts. Nobody in my family, my friends, colleagues or even region knows this disease. Accordingly, they can identify neither with my pain nor with my pain. These days I'm suffering from a flare too but was surprised by my reaction. Last Friday, I had exessive D. I thought it was just a diarrheal bout. The next day, it was followed by the lovely combo: fatigue, severe pain and fever. I kept denying that I have a flare up. When I saw the surgeon because of anal fissures and pain in the rectum, hetold me that both my intestines and colon are inflammed, suggested an antibiotic and recommended that I should see my GI. The GI agreed on the antibiotic and prescribed me enema cort along with pred and MTX. I know that this a minimal flare up and not a severe one.In the past, I would have been depressed but this time, I have a positive attitude which surprises me. I was only absent from work for a day, keep taking antispasmodics, Lomotil and try to follow my doc's advice of waiting for the antibiotic to kick in. I'm also trying to bear anything in the hope that one day MTX will kick in. I learnt this from this forum and I learnt that this is the nature of this disease. It's God's test. Try to live up the moment to its fullest when you are healthy and just go with the tide when Crohn's hits.
Hope you are better soon.
Take care
Posted 10/6/2011 2:32 AM (GMT 0)
I'm sorry you feel so awful and I hope your good days start coming back to you with the energy a 25 year old deserves <3
Posted 10/6/2011 3:58 AM (GMT 0)
I sure feel the same. I get a good couple of hours and then I feel like my body is made out of lead or I'm walking underwater. A decent week or two and then bam-O

Stay strong
Posted 10/6/2011 6:15 PM (GMT 0)
You guys are the best! I was ok yesterday. Not good but not awful. I randomly got a fever while sitting at my desk around like 3:00. I was kinda glad it happened at work because now the guys I work with can start to take the hint. One guy was even like "how do you get a fever just sitting at your desk?" all i said was welcome to my life. Ive been getting alot of random fevers lately towards like the later afternoon/early evening. Even tylenol wouldnt kick it yesterday. I was in bed by 7:30. My roommate told me i looked like i was dying. Do any of you get random fevers like that? I really feel like they just happen out of nowhere?!
Posted 10/7/2011 3:51 AM (GMT 0)
Just happened to me last week but the consensus was that I allowed myself to get dehydrated.
Posted 10/7/2011 10:30 AM (GMT 0)
Yes, I did have that a lot for a couple of successive months. At that time, I saw a doc other than my usual doc. This new doc told me that it is normal that I get high fever constantly and suggested that I should take Cipro 500 / 12 hrs for the first five days every month. I did that for a couple of months and it really worked. I do hardly ever get know a fever higher than 37,5 in comparison to the past where I used to have a fever of 39.5 and 40. Ask your doc about this maybeit can be a help.
Take care!
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