Cutaneous Crohn's?

I saw a thread from around a year ago about this, thought I would start a new one in case there are others dealing with this. My dx is currently in flux between UC and Crohn's colitis and early this year I developed a lot of painful mouth sores and then came the body sores--pimple like on my lower abdomen, side, labial area a bit and definitely on my butt. I was hospitalized in Feb of this year due to the severity of the mouth sores(stopped eating) and some crazy facial swelling due to sinus infection/inflammation and during this stay, drs were concerned about the pimple like sores on my body. There was a biopsy done of one of the sores on my butt, never heard what became of it. All of that finally calmed down, no real answer to the body sores, but I didn't really worry about it, as they weren't painful or anything.

In the last week or so, a couple more mouth sores have popped up and my body sores have definitely increased to the point where one of the ones on my butt is getting huge and painful and making sitting down a challenge. I started researching this a bit and I came upon Cutaneous Crohn's. The sores/lesions/whatever sound EXACTLY like what I have, the physical description and especially the location of the sores. My GI knows about this and had me take my 2x a month Cimzia shot early(only could do a day early to shipping issues), but we really haven't talked about all this yet and I am seeing a dermatologist tomorrow. From what I have read, the tx for this isn't standard nor does it work always..

What do you all know about Cutaneous Crohn's? Any info and/or personal experience would be great.

Thanks.

Thanks for your replies. Your personal experiences show me my symptoms could be a whole lot worse! I feel for both of you, sounds very painful to say the least.

The dermatologist said the biopsy done a month ago showed evidence of infection but not cutaneous Crohns, and what I have probably is folliculitis or pyoderma gangrosum(I really doubt this one as I have seen pictures of this and I do not have huge open gaping sores anywhere). The dr thinks the ones on my labia are probably glands that are inflamed, but they are below the surface of the skin and not the same as the ones on my butt. I am seeing my ob/gyn for a regular checkup soon so maybe she will give another opinion. The dr gave me some antiseptic washes to do in the shower as well as a sitz bath and some other stuff to put on the sores on my butt a couple times a day. But basically I heard what I spent a week hearing while in the hospital--this is either an infection or due to the IBD, just don't know for sure. I do kind of wonder if this is all related the Cimzia in that I very rarely had any sores of any kind before starting Cimzia in September. Either way, I definitely think Cimzia makes it hard for me to heal from anything, I get infections from paper cuts.

When I thought I had UC, which has definitely had its bad times, especially in the last year, I at least understood what I was dealing with usually straight up GI symptoms. Now with all these other things creeping up, I feel like my learning curve is back to zero..I have a lot to learn.