Posted 4/30/2012 3:18 AM (GMT 0)
Hi. I have CD and have had 5 surgeries since 2008. I originally was diagnosed with UC and had an emergency colectomy with ileostomy. I later had a j pouch created, then 3 months after that had the takedown. I experienced so much pain and blood loss in the following year that I decided to go back to an ileostomy. The surgeon decided to keep my J pouch still intact though, just leave it dormant. I then had a resection about 10 inches in from the stoma, and finally got rid of the major bleeding that resulted in about 60 to 70 units of blood in the course of 2 years. My last surgery was in Nov 2011. Now I have a J pouch that is causing me to run to the bathroom and expell small amounts of blood mixed with a discharge, and is causing a lot of anal pain. An ultrasound showed a lot of inflammation in the J pouch and too much fluid build up. I am currently deciding whether or not to have another surgery to remove the J pouch and keep the Ileostomy permenantly. But I wonder has anyone ever heard of anything like this? Ive tried every antibiotic, Humira, Remicade, and all the others.. Thanks