1st time posting

I have been using the site for a while as a refrence of sorts. I was diagnosed with chrons in Nov of last year and am a 32 yr old wife and mom to 3 small children. My GI just started me back on steroids and added 6 mp.....I am feeling a lil lost and overwhelmed right now and basically just needed a safe place to vent. I just want to be me again. My 7 yr old told me he hates Chrons and wants his mommy back....that made me feel worse then the rest of the crud I am dealimg with combined.....oof wore out tired and frustrated! Sorry not usually one to whine just have to let it out somewhere.

:-( It's hard eh..

my 3 yr old has started saying, every time we go in the car, taking mummy to hospital? :-( breaks my heart.

Yes can understand how ur son feel becos me also having some probs too since last year nov till now keep admitted to hospital so now if I need to admit my son will say this ( don believe it at all) tat is they are sad in their heart to see mummy suffering e pain, my doc always don't give me an ans last year I have pain can't eat keep contispation so ask to forward appt I tell doc tat I feel tat my crohns flare up also have ucler inside but he don't trust keep ask me take steroid till today in 2012 jan midnite I can't control e pain I went to a&e admit second day doc came ask to do endoscopy MRI ct-scan barium meal all kind if scan show nothing inside ask go back home after 2 month later my weight drop 5 kg in a month doc ask admit then arrange capsule scopy show small intestine got a lot ucler but still give steroid azathprine vit d tat all my prob now is all meds can't aborsb in my body oredi now I ask for remicade but he say still don have too unless needed today go check up he say chg e steroid away n new kind name is budenofalk have you try b4 this got any side effect , I am new in HW too nice to meet you my name is Irene Pls take care urself you ate not alone

Hi, and I just wanted to welcome you. I'm sorry you are suffering. Vent away!! Sometimes it really helps to know you are not alone.

I'm so sorry that you're facing this difficult disease with three small children depending on you. You've only been diagnosed for six months, and it usually takes a while (and some experimentation) to get the disease under control. When your seven-year-old says that he hates Crohn's, maybe you can tell him that you understand because you hate it, too--and that your doctors are working very hard to make you feel better soon. Tell him that you can help each other be patient until they figure out what medicine will work the best. As with all children, if you acknowledge and respect what he's feeling, that's half the battle won already. And if you can make him feel that you're in this together--and that you can share the happy times and help each other through the tough times--that's another bit won. I wish you all the luck, and I'm so sympathetic to what you're dealing with.

It can be really hard on the little ones. My first hospital stay was when my son was in 3rd grade. He was really crushed by having me gone (even though Dad and Grandma was there for him). Ever since he is afraid of me needing to be in the hospital. He's 14 now, and it's still hard on him. Not a lot we can do though, we have to take care of ourselves so we can take care of them!

I agree that it does teach them to have compassion and empathy. Now that's he's 14 he tries to take such good care of me when I'm flaring. Constantly checking on me, asking if there is anything he can do. Sweet kid. But it hurts me that he has had to watch me suffer with this.

Just know that your not alone there! I hope you start feeling better soon!

2busy! Welcome to HW!! This is a great site to learn or throw a suggestion/question out and get some good feed back. Give yourself sometime to deal with your new dx (diagnosis). I think it took a year to wrap my brain around it and I was even mis-dx for a long time.

My kids were 13 and 16 when I was dx. Now, they are 24 and 21. I wasn't a stranger to hospitals either as I've had lots of other fun junk going on with my body. :(

Anyway, the stress of raising kids was enough for me to flare quite often. My husband traveled weekly so I was on my own and it was alot for me to deal with.  My advise ...don't sweat the small stuff. Let dishes go till the morning n' stuff like that.

Also, I know my kids say now they wished I would have found other kids that had/have parents with Chronic Illnesses for them to vent or hang out with. Like possibly starting a "support group" in school...just other kids they have that in common with. It forces kids to deal with some adult issues young but in the long run they are so compassionate later in life. Welcome again...

Hello 2busyforthis,

Sorry that you are having a hard time dealing with not only how your children are reacting to your illness, but that you are also having a hard time with the fact that you have Crohn's.

Whine if you want to, we all have, so go right ahead whenever you feel the need, I really think that venting always makes you feel better.

Good Luck to you and your children, I think that it will all come together for you eventually.