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Developed Remicade antibodies.....now what?

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Crohn's Disease
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Posted 5/26/2012 10:43 AM (GMT 0)
So, after 6 months thinking the Remicade was working for me, it turns out that as quickly as 3 weeks after an infusion, the Remicade was not detectable in my blood.  And I developed antibodies, so now I need to switch.  My main clue was that I got HORRID joint pain & swelling.  I mean, it felt as though my joints were sprained or dislocated.  I am 37 and was barely able to shuffle around with a cane or dress myself.  They started me on MTX last week and prednisone but now they are trying to figure out if I should switch to Humira or Cimza....I go in next week to discuss the next steps.  Have any of you had this happen?  What did your Dr.s do????

 

Posted 5/26/2012 11:02 AM (GMT 0)
I got allergic reaction to Remicade so my GI made me wait 3 months and then put me on Humira two years later and it is still working perfectly for me :)
I had good results from the Remi too until I got allergic
Posted 5/26/2012 11:09 AM (GMT 0)
Glad its working for you! Did you find it difficult to inject yourself?
Posted 5/26/2012 4:46 PM (GMT 0)
No I use the pen, it hurts when the drug is going in but thats all and so much more easier than remicade.

I used to inject into my stomach now I do the thighs and I like both.

And the first injections did not hurt it was not until a few months later that it started to hurt
Posted 5/28/2012 8:17 PM (GMT 0)
I also take humira. Though I have fisyulas crohns, not joint pain. :)
Posted 5/30/2012 9:24 PM (GMT 0)
Can't take any of the disease modifiers b/c I have MS along with Crohn's and it might bring the thyroid Cancer out of remission. Pentasa makes me vomit, apriso with creon makes me nauseous. I take entocort for CD. Injecting myself with Copaxone for MS is easy. My hubby gives me the Vit B12 injection. I tell him I can give it in the thigh(this is a preferred site) He would rather give it in the butt(NOT RECOMMENED B/C OF SN)
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