Posted 7/23/2012 12:57 PM (GMT 0)
I had my 4th (double dose) infusion three weeks ago and I've been mega-flaring for a week. I was never able to tell if remicade was working in the first place because I was always tapering off prednisone at the same time and, low and behold, once again I'm relapsing after tapering off prednisone. I was expecting to see results with the remicade by now but I'm wondering if I should even continue with it because obviously it doesn't seem to be doing a darn thing. Or am I just being impatient? Should I continue with the infusions and see if maybe the next one does something?
I already have zero patience for this. It's been a year now. A YEAR. And still no sign of hope anywhere. Ugh, I'm so tired of this. -.-