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meds for crohns

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Crohn's Disease
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Posted 9/17/2012 3:46 PM (GMT 0)
Hi
I am coming to the end of my pred course(4 weeks) and flare up has gone away...
seen the GI last week, and she basically said that I have to strongly think about some long term meds(cant take pantesa since it worsend my symptoms), she said the dissese is only going to get worse, and she is worried about perferation:(
she also said that she knows that I will flare up again after I come of the pred.
I am on the scd diet, and I am extremly unsure about takings meds, but also dont want any surgery, anyway, looking for advice on this matter
SD smhair
Posted 9/17/2012 4:27 PM (GMT 0)
I'm glad to hear that your flare has gone away! It can be difficult, but many of us have found that it's worth it to have the medications so that you can lead a fairly normal lifestyle.

I've noticed that you've been asking questions that others have asked before. When you have a question, it's a good idea to look through old posts and use the search option to see what other people have answered. Of course people are happy to answer questions you have - that's the point of the forum! Please don't think that I'm saying that we won't answer questions that have been asked before. We're all happy to help, but I know for me I've found that I can get answers more quickly if I find a similar post from before rather than waiting for people to answer my post.

Here is a link to a thread with the same question about what different treatments are available. This was posted just within the last few weeks. I hope it helps! Let us know if you have any specific questions about these. I'll be the first to admit that I don't know a whole lot - I was only diagnosed two years ago. But there are many people who know a lot on this forum!

www.healingwell.com/community/default.aspx?f=17&m=2511307
Posted 9/23/2012 8:48 PM (GMT 0)
I am recently diagnosed and found that the medication does help to manage the symptoms.  I am on Pentasa.  I also tried Aercol (not sure of the spelling).  the Aercol did not work well for me.  I do have success with Pentasa.  I would suggest trying the medication to maintain your disease.  It will take some time to find the right combinatin of drugs that work for you.

Hope that helps!

Posted 9/24/2012 2:17 PM (GMT 0)
Hi
Your doc does not have all the answers (unfortunately). The doc assumes nothing is impacting your CD except the drugs and most likely gives no credit to SCD.
You have only been on SCD for a short time but it is possible it is the diet that is helping with your symptoms. Once SCD got everything under control for me I have been in remission for the last two years. It is not impossible you are on the same healing path. I could not take pred (made me crazy), but Entocort worked very well for me. I was on that for about 1 year. I believe it was SCD and entocort that finally got things under control, but that took 18 months.

I could not stand the full dose of pentassa either. However, once I was in real remmission I dropped the entocort and tapered down the pentassa until I found a dose that I can tolerate. I want to be on drugs but at the lowest dose possible. I currently take 3 x 500 per day. At this time I feel it is best for me to stay on meds.

Given you remain symptom free, perhaps you can experiment with lowering the pentassa dose.

Congrats on getting your gut under control

David
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