HealingWell
Search Close Search
☰

22years of TI CD, now in colon? Need to relearn tx options

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/12/2012 12:11 PM (GMT 0)
So my latest CT scan said my current flare is in my colon and not in my TI area where my resection was 22 years ago.  I have studied and am very familiar with all my treatment options when I knew it was TI located and I could have fistulas again.  Doc says after we get a scope done to biopsy area and check it out better, we will likely have to consider new meds.  Was too stunned to ask what meds.  Is colon care that much different than what I know from my TI care???  Other than the mesalamines that are location specific, what new things should I know.

I am scared for my future for the first time in a long time (thinking about cancelling future planned vacations and the addition to the house because money worries always jump to mind first for me).  I am still not eating well and having sharp pains....I can't believe I am 46 years old and 22 years into CD and I am about as scared as I was at initial rupture.

Posted 12/12/2012 12:37 PM (GMT 0)
Hi Habs,

Mine was located in my colon as well and went from Pentasa to Imuran and then finally to Humira prior to my emergency surgery in August. I really only found relief with the humira. Now with my loop ileo I am still taking Humira because, as we all know, this freaking disease is ruthless.

It's taken me almost four months to finally be thankful for my surgery. It truly has given me my life back even with the thought of having to have another surgery next fall.

I wish you the best in finding a treatment option that works for you.

Take care,

Kelly
Posted 12/12/2012 2:51 PM (GMT 0)
The mesalamines are effective in the colon. I think you need to talk to your DR and discuss the findings of the biopsy. How deep into the colon did the pathology show inflammation? Remember that the mesalamines are essentially a topical medication and may not resolve inflammation beyond the surface cells.
Posted 12/12/2012 3:15 PM (GMT 0)
Hi Habs,
Wait for the biopsy before you panic....and the meds aren't all that different. Last year my CT scan looked really bad and we thought my Crohn's had spread. It turned out that I had a bad c.difficile infection and it put my bowels in to spasm, which made the CT look worse than it really was. Make sure you get a stool culture along with the colonoscopy and biopsies. I don't think you need to change your life plans just yet. Try not to worry and hang in there...you are doing all you can.
Posted 12/13/2012 6:28 PM (GMT 0)
I know it's easier said than done but wait for the scope results. Don't make any harsh decisions until you know more.

Sending good vibes your way (((HUGS)))
✚ New Topic ✚ Reply