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I have to stop saying I am feeling better....

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Crohn's Disease
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Posted 1/10/2013 12:54 PM (GMT 0)
Everytime I say it, I hit another low in my flare recovery.  I guess waking up at 4am with nausea, gut pain, wicked joint pain and having a hard time having a bm means I am not feeling better.  I really want to sound positive in front of folks so I have been telling people I am almost back to my normal...I am now calling baloney on myself.  I hurt, I am exhausted, I am not eating well and I am actually getting teary eyed from frustration.  There I know you guys understand...maybe I can put a happy face on hear at work knowing that.

I know there are others that are more sick, but right now it is not helping.  I am going to sing Howard Jones all day "Things Can only get Better" --a bouncy song that will make me look more positive. yeah

Posted 1/10/2013 1:13 PM (GMT 0)
I've been doing the same thing and I need to stop, too. I guess it just makes it an easy way to ignore the fact that we feel so horrible. It's exhausting for sure. Keep your head up, though!

Jade
Posted 1/10/2013 7:04 PM (GMT 0)
Thanks for the support Jade! Husband now has me wondering if I don't have a bit of the flu instead of flare up issues. I still think it is my current flare due to the gut issues and how I ahve felt the rest of this day. Want to go work at home, but have to wait for last minute info to meet a deadline. At least I have the winter coat off my shoulders now :-)
Posted 1/10/2013 7:42 PM (GMT 0)
I do the same thing. For me, I think it is a little bit of denial. I'm in remission, (I think) and when I am doing well, I forget that I'm never really "fine" the way normal people are. I drove my daughter to college, and we stopped at Burger King. I never eat fast food, but I've been doing so well, so I ordered a grilled chicken sandwich with no mayo, and ate a few of my daughter's fries...seemed innocent enough. Within an hour the big D started, and we had to stop at gas stations three more times within the next two hours of the trip. I don't quite understand how I even digested it fast enough to get sick so fast. Another Crohnnie tale of woe. I hope you get to the bottom of what is currently going on with you and you feel better soon. There are a ton of stomach viruses going around where I live.
Posted 1/10/2013 8:06 PM (GMT 0)
I completely understand. I dont know if I have ever seen true remission! I try to live day to day with the appreciation that I am not in the hospital hooked up to a bag of blood !

This disease really bites!!!

Praying for a cure!!!
Posted 1/10/2013 8:17 PM (GMT 0)
@gumby44... I couldn't help but chuckle silently in the back of the lecture hall when you wrote "I hope you get to the bottom..." I know, I know.. horrid - but, you've got to keep some sense of humor; otherwise, life just plain stinks all of the time.

It's possible that you might have some sort of stomach bug... don't discount that. But, you know yourself and what you're feeling and it obviously just isn't good.

I'd like to say I'm feeling better....but, I think the truth is that it's only because I don't eat. But, y'all probably know that that brings on a whole host of other icky feelings (extreme exhaustion in particular). So, it's kind of a lose-lose situation. There is a girl on campus that is in one of my psychology courses that shared with me that she has crohn's. We're meeting tonight after dinner to just talk and what not - it'll be nice to have someone that can give some advice about how to talk to my GI to get the best outcome from my appointments... especially because I'm paying out of pocket now! And, it'll be even nicer to just know I'm not going completely crazy for no reason.

I hope you all get to feeling more human soon - that's my prayer for myself as well!
Posted 1/10/2013 9:45 PM (GMT 0)
I do the same thing,lol:) it's a problem because then when you begin to say you don't feel well everyone tells you you were great last week! But I do hope you start feeling better and get everything sorted out! I like your song too:) the only I like to sing when I'm feeling bad is a "nobody gonna break my stride" or something like that. Until I'm feeling really bad and thenI just tell myself to shut up.LOL,j/k
Posted 1/11/2013 3:59 AM (GMT 0)
Hi Habs,

I am guilty of continually saying I am feeling better. If someone were to know I wasn't feeling well, the next time they see me or speak to me, auto pilot takes over and out comes, "I am feeling better, thanks."

I don't mean it as a blow off but if I am not feeling better, I just don't feel like explaining why I am not feeling better and find it easier to just utter those words.

I hope you feel better, for real, very soon!
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