Probiotics

Hi,

I was just wondering how many of you take probiotics and how much do you take? I have just started taking Humira. I took the second load dose yesterday. I have read that crohn's attacks the good and bad bacteria in your system. When I don't take my probiotics I have seen that my symptoms are worse. I would like the Humira to provide the opportunity for good bacteria to colonize in healthy, beneficial amounts. I am taking Klaire Labs Ther-Biotic Detoxification Support. 2-4 capsules daily at 50 billion CFUs. Yesterday I took my last 5 mg of prednisone & I believe the 4 capsules(2at night and 2 in the am) have helped reduce the weaning off symptoms.

Thanks,
Valerie
44 year old mom
3.6 grams Lialda
Humira 40 mg bi-weekly

im ordering the VSL this week from amazon....my dr wouldnt write a scrpt for it.  Feels there isnt enough info on it.

I currently take the OTC Culturelle 2 times a day and see some improvement.  Hoping to see much more with the  VSL!!

 

I take Healthy Trinity (Dairy-free) by Natren. You can find it in Whole Foods.

Dave...
Just diagnosed with Crohn's this week... and this is all new to me. I'm told to "watch my diet" but really haven't a clue what to do. Some people who "have a friend of a cousin with Crohn's" (you know how it goes!) who takes probiotics, to some success.
Is yogurt considered a probiotic?
What about typical store-bought yogurt?
I already have found that low fiber helps ease the pain, yogurt is on my list already. If it has further benefits... well great!!!
Thanks.

Hi,

I am allergic to gluten, soy dairy and egg. VSL may not be good for me because it can contain dairy. I tried Garden of Life Probiotics and digeative enzymes and reacted to it. When I called garden of life I found out that they test for Gluten to 20 parts per million. I find that if a product tests to 7 parts per million(PPM) I never react. The FDA tests to 20 PPM where as the gluten free certified products test to 7PPM. When I say Gluten Free certified I am talking about the GF in the circle as in http://www.gfco.org/. I believe these allergies and intolerances increased as my crohn's got worse.

OzarkScotty one of the most helpful things I did was take some stool and blood tests to see what I was allergic to and intolerant of. And by giving up these things I was able to feel better and eventually take some of these back. The tests I did were from Entero Labs and Cyrex Labs. https://www.enterolab.com/default.aspx. I did the Cyrex labs array 4 test to understand what gluten I am cross reactive to. Here are the tests available via Cyrex http://www.cyrexlabs.com/CyrexTestsArrays/tabid/136/Default.aspx. Because I am allergic to egg and dairy the scd diet did wonders the first three months and then I went backward. So I had to find something else. Because I had so many allergies and intolerances it was virtually I possible for me to give up one thing and see a difference. In retrospect, sonce i had no idea about these tests, I should have given up the 8 most common allergens, the gluten cross reactive items and lectins. Then after a month added them back in one at a time to see if they made me worse or had no affect. The tests made it much easier. Here is what Cyrex tests for cross reactivity. http://www.truehealthlabs.com/gluten-associated-sensitivity-and-cross-reactive-foods/. Just google gluten cross reactivity for more info. And yes probiotics are key!!!!! I read that Crohn's disease may attack the good and bad bacteria in your system indiscriminately. I believe it because every time I stop with the probiotics it gets worse. I found goats milk yogurt to be the most healing for me and it makes sense because molecularly speaking it is very close to that of human breast milk. Check out the SCD website for making yogurt instructions. http://www.breakingtheviciouscycle.info/ or the pecan bread website http://pecanbread.com/. The thing with any of the diet changes or probiotics you need to give them time to feel the improvement, sometimes you feel it within days and sometimes it could take a month or so.

I love RenewLife probiotics for my son, Ultimate Flora Critical Colon, 80 billion, they also have packets. SCDiet with proper food combining and lots of healing fruit and vegetables softly steamed or cooked in chicken broth. Best of luck to all!

My take... I dont trust the allergy tests. They get people to see empirical evidence of their reactions but if we try to tune into our body when we eat, it will often tell us what we need to know. When someone is reacting to EVERYTHING, they have a leaky gut. These arent true allergies, they are iGG responses because the body is reacting to everything it's finding it its blood that shouldnt be there. And whole broccoli bits/sunflower seeds/sesame/peanuts shouldnt be there, but they are because our guts are permeable due to Leaky gut. Its so overwhelming to get those results that you react to a zillion things. First look at diets like FodMaps, SCD (Intro), Gaps (intro) and tune into your body.. dont eat things that you react to. If that means eating squash and chicken every day for a week.. its better then having your intestines cut out, right? and make sure to eliminate dairy too.. I hung on to dairy for so long, but i just have a hard time believing anyone who has crohn's isnt reacting to dairy. I know the SCD says to eat cultured dairy yadda yadda.. but I do not buy it. Then again, I think this thing is caused by a bacteria that survives the pasteurization process and causes Johne's disease in cattle.. so dairy isnt even appetizing sounding to me anymore. I do believe in VSL and Three lac. No soy (hard on the digestion), gluten, dairy or SUGAR. Stop feeding them. Then its peeling layers of an onion. When you recover enough you have to kill the opportunistic parasites that are making you sick by keeping your good bacteria from really flourishing before you can ever get to the root of the Crohn's mycobacterium, all the while flooding yourself with probiotics. You can start with probiotics that have been cultured on nondairy sources, and then you can move into VSL 3 later. I do think it is a very good probiotic. So is ultraflora by Metagenics.

I stopped my last flare with 1 tsp collodial silver at the top of every hour and 1 Pb8 at the half of every hour. It took three days, but the inflammation was so bad when I started I couldnt pass stool. usually my flares are much much longer and Im currently on no meds

I agree with dfdavedf! I have been making my probiotic yogurt using a probiotic capsule containing 70 billion I.U. and I end up with a trillion, too. Homemade yogurt is easy and the instructions online are clear. I use only organic whole milk. Look online to find resources that explain the different beneficial gut flora and their function.  

My CD was always limited to the terminal ileium, which has been resected three times. I was in agony until 2009, when a physician recommended probiotics, digestive enzymes and some high quality liquid vitamins. The liquids don't make my guts work so hard to absorb the nutrients. At the same time, eliminating all highly processed food and eating only organic became easy. But, as anyone will tell you, rest, avoid all alcohol, and choose friends who support you.