1 week of prednisone and some gut pain returning

and 1 week until my Gi appt.  I just don't know what to do now.  I wouldn't mind staying on low dose prednisone for more time.  I felt great in my gut, I was eating, and best of all I did not ache/hurt in my hands-knees-back like I am again already.  I am getting gut pain in certain areas and it is not severe (but I ignore a lot).  I am back to that I am uncomfortably full with any meal...big pressure just under my rib cage.

Weighing that feeling with should I just cave to the Imuran/humira or the med my GI is thinking for next.  If you know my past posts..I just don't want to move to the next med if I can at all possibly avoid it.  That is jsut how I feel for myself....but I loved claimbing stairs or ramps without the ache.  Oh I just don't know.  I really miss the 22 years of knowing exactly what my Cd was and how to manage it.

Have a list for my GI visit....why is my tongue on fire(suspect thrush or B deficiency), tell him I had another pityriasis like rash, talk about the joint aches, explain that I am almost back to the old me much of the time, ask about the horrendous odor that has shown up, exhaustion.  I just need to not feel like I have to rush through the visit...maybe I should bring hubby.  Gi is a great guy...but I feel like I need to spit everything out in a hurry and always forget something

Sorry rambling again...not used to being so wishy washy and lost.  Needed to write this down...sick of telling hubby and him looking pained and helpless for me.

Hi Habs,
Definitely bring a list of your symptoms and questions about meds with you. If you have it all written down, you won't forget to ask stuff if you get anxious. My GI is super nice and acts patient and kind, but I see his giant waiting room full of people, and I have a tendency to try to talk fast and get to the point so I don't take up too much of his time. I think it's really my issue more than anything he does to rush me. I think writing things down in advance really helps you to organize your thoughts and concerns too. Will all of the joint aches and fatigue it does seem like you are flaring to me.
For me, when I flare after a longish remission, I tend to need to revisit the grief process all over again. I totally accept that I have Crohn's but I still get sad and surprised when I am doing well and then it suddenly gets worse. You are not alone in this frustration! Let us know how the visit goes.