Posted 3/6/2013 1:27 PM (GMT 0)
Does anyone know of a doctor in the US that is willing to treat a 16 year old using RMAT therapy? My son has been on Remicade since last May and had an infusion January 2nd. On January 29th he began getting sick again, not that he was ever feeling great, and we are basically being bullied by the doctors to give him another infusion. I feel like our hands are tied because I want him to feel better but I am also terrified of the possible side effects of remicade and the fact that it may not work for him at all. I don't see how trying this antibiotic cocktail could hurt.