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Are probiotic enemas safe?

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Crohn's Disease
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Posted 5/21/2013 9:16 PM (GMT 0)
I tried the probiotic enema, and I seemed to get sicker before I got better.  But then I don't know if I was getting better anyway from the Vancomycin, or not.

I was wondering if the probiotic enema caused a die-off (ie Herxheimer) reaction?

So, do you folks know if probiotic enemas are safe?

Please comment.

Thanks!      Margaret

Posted 5/21/2013 11:19 PM (GMT 0)
yes, they are safe. i've done them before with vsl #3 and renew life probiotics. didn't see any difference symptom-wise so i stopped doing them. vsl is too expensive to put up your butt if it doesn't work- i must've did it every night for 2 weeks.

do you still have c diff?

i've tested positive again for it since january and can't get rid of it. it's quite annoying. vancomycin just isn't strong enough i guess. trying to get a doctor to do fecal transplant is impossible where i live- it's just not done. i just ordered some iodine to make iodine enemas. if you look online, it is known to get rid of c diff because it kills the bacteria AND the spores.
Posted 5/22/2013 12:33 AM (GMT 0)
An iodine enema? That's a great idea. I might do some research on it first.

And yes, I have c. diff. from prolonged antibiotics use.

Fecal transplants have been put on hold by the FDA (all over the US) for now, anyway. Just curious though, why didn't you consider traveling?

I've been so sick, I would have flown to another country.

Thanks, Margaret
Posted 5/22/2013 1:00 AM (GMT 0)
tera, yeah, i think you can do an enema with anything! i ordered a solution called lugol's iodine.

http://thebreathoflife.net/herbalstore/catalog/mi_lugols.php

that stinks about them being put on hold. i wonder why? i haven't travelled just because it's hard with this disease- well kind of impossible. i think i'd have a panic attack on an airplane (never flown before). can't even imagine the cost of that plus the treatment- i don't work so not sure how i'd ever pay for it. i did them at home last year- 8 total. i got a lot worse from it so i'd prefer to do it at a hospital so i could get donor testing. i was just so desperate last year when i tried it and my doctors told me i was nuts. i used enemas and i'm not so sure that it reached far enough up.
Posted 5/22/2013 1:09 AM (GMT 0)
Oh oh.  Well, my donor's stool is getting extensive testing.  It's going to cost a lot, bc. he doesn't have insurance, but I figure it's better than being dead.  Literally.

I just realized I can't do iodine because I'm allergic to it. 

It's too bad.

Thanks, Margaret

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