Lung issues with Crohn's

40yrswithCrohns

New Member

Joined : Nov 2013

Posts : 2

Posted 11/27/2013 7:19 PM (GMT 0)

I am a 62 yr old with Crohn's. I started symptoms when I was 20. They did not diagnose for 5-6 years as it was so rare in 1972.

I have had several chest cat scans showing several nodules in my lungs. The pulmonologist treating me believes the changes are related to my Crohn's Disease. Anyone else having lungs issues? I don't really have any symptoms - they were found on a routine chest x-ray.

crohnielass

Veteran Member

Joined : Mar 2009

Posts : 1118

Posted 11/27/2013 7:38 PM (GMT 0)

Hi I have had crohns for 34 years but have never had issues with my lungs. have had quite a few chest x-rays in the past few years before being able start meds such as remicade & Humira I really don't know if crohns causes lung issues Hopefully somebody will be along who will know the answer for you x

Ides

Forum Moderator

Joined : Nov 2003

Posts : 7204

Posted 11/28/2013 1:03 AM (GMT 0)

Welcome to Healing Well! While rare, there have been many medical scholarly case presentations and studies showing that Crohn's can cause lun problems. Here is a link to just one:
www.ncbi.nlm.nih.gov/pubmed/0008809240

Andreita

Veteran Member

Joined : Aug 2011

Posts : 3844

Posted 11/28/2013 1:21 PM (GMT 0)

I have chest pain and the ER people said it's from my colitis. But honestly I don't believe it. I'm currently waiting for my appointment with a lung specialist.

JaSanne

Veteran Member

Joined : Oct 2006

Posts : 2086

Posted 11/28/2013 6:07 PM (GMT 0)

Crohn's is connected to so many extra-intestinal manifestations. I don't recall coming across this one but my memory is terrible. Thanks for bringing it up and thanks, Ides, for the link.

novice

Regular Member

Joined : Aug 2011

Posts : 299

Posted Today 8:44 AM (GMT 0)

I'm glad this thread was created. Ive had crohns for 4 almost 5 years now and just this year they found a nodule in on my lung too, that was about 3 months or so ago now.

I worry every time I get chest pain or shortness of breath lol im only 22. How often do you get these checked for changes? My Gi jusy dismissed it and said it was normal for my age its size and my condition. .. but no nodules are normal! Lol

girlzilla

Regular Member

Joined : Oct 2010

Posts : 201

Posted 12/1/2013 3:45 AM (GMT 0)

@Andrina:

I have chest pain as well. Unfortunately, for me personally it is related to acid reflux which I have a terrible time with. I blame my crohns-colitis, and will be going for an endoscopy soon to prove it!

CCBoys

Regular Member

Joined : Sep 2013

Posts : 33

Posted 12/3/2013 3:00 PM (GMT 0)

M asthma is for sure worse when I am in a bad Crohn's flare. my GI says there is a correlation between the 2 and his NP says there is not. I tend to believe the DR over the NP...

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