I have a question for you guys.
GI prescibed me 20mg of predisone at the beginning of november to use until I started Humira. I started Humira the first weekend in November. I was feeling great, so I called the doctor about tapering off the steroids. I was told to begin tapering by 5mg every 2 weeks. So, I went from 20mg to 15mg and then to 10mg. When I got to the 10mg, I felt as if I was flaring so I upped the dose back to 15mg the next day. I have now been on 15mg for a little over a month. I followed up with my GI on December 16th. I told him that I felt as if I was flaring at 10mg, upped the steroids back to 15mg, along with using the Humira. He said that it sounded like we were heading in the right direction towards remission.
about 3 weeks ago I had the flu. I went to walk in clinic since my PCP was out of office. The NP there prescribed me flagyl 500mg 4x a day and a z-pack as a "preventative measure." I have had C-diff in the past and also since I was on the humira they felt I needed these antibotics. While taking the antibotics, I developed thrush. After finishing the z-pack, I finished the flagyl after taking it for 6 days because it was wrecking havoc on my body. So then I was prescribed dilfican for 6 days for the oral thrush. I finished that yesterday and the oral thrush is almost gone.
I am fearful that the combination of pred and humira has been opening me up to other infections. I have been sweating ALOT, some mild cramping in my upper ab, experiencing cold feet & hands, muscle aches, SEVERE fatigue, and continued low fever.
I figured since I've been battling with other health conditions that I would begin tapering to 10mg again to see if I am able to get off the predisone. When I went to get my refill, the pharmacy said that there were no refills and only gave me 30 pills.. Should I not do this without consulting with my GI? He is out of the office until next week.
Tomorrow is also my day to take my Humira.
Advice? Suggestions?