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Crohn's Disease
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Posted 1/16/2014 11:13 PM (GMT 0)
Hi guys!
My name is Lucy Lai and I'm a high school senior. I'm conducting a study on stress and coping in people with chronic disease. The interest in this topic stemmed from the fact that I live with systemic lupus erythematosus. Since my illness has had such a big impact on my life, I developed a research plan to survey others with chronic illness to measure their levels of stress due to disease and determine if there was any trend in coping. Your input will help me compile information on the lifestyles of those who suffer from chronic disease. If at any time, you wish to stop taking the survey, you may do so. No names or personal information are recorded and all data will be available only me and will be destroyed at the end of the study. This survey takes approximately 7-10 minutes to complete.

Please see the link to the survey!
https://docs.google.com/forms/d/1HdOc41uH9RgRBaj38Fe7K6nmuhumzMr0n1eCrqq2fM0/viewform

Thanks so much for your help! It means the world to me

-Lucy
diagnosed at 16...
Posted 1/17/2014 12:01 AM (GMT 0)
Lucy, while I admire your commitment to learn, and the survey is a wonderful project, all research assistance requests must be approved by the site owner and administrator. He can be reached at [email protected]. Please contact him to get approval.
Posted 1/17/2014 12:05 AM (GMT 0)
I emailed him a few days ago but he has not responded :( I'm sorry! I guess I will wait a couple of more days
Posted 1/21/2014 1:46 PM (GMT 0)
Hi Lucy - Thanks for the link. I completed your survey.

One word of advice - if you get a lot of responses from individuals with IBD type diseases like Crohn's and Ulcerative Colitis, you may want to look at the responses to certain questions separately. There were a couple of questions about stress eating, and I would imagine that many of us with IBD would not feel like eating more when our disease is at it's peak activity, regardless of our stress levels. Too many "disagree/strongly disagree" responses from IBD sufferers may mask the overall results and hide what folks from other conditions may answer with "agree/strongly agree" responses.
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