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CD and joint pain

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Crohn's Disease
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Posted 1/29/2014 10:27 PM (GMT 0)
Hi everyone,
I was diagnosed with CD just over a year ago. Prior to my belly pain I had bad back aches. Once I had a resection I felt not bad for about 5 months. Since august my knees have increasing been getting more painful along with my back lower and upper, my neck and now my hips. In oct i had a flare and was put on to Immuran along with prednisone. I've now been off prednisone since mid Dec. and have been referred to a rumatologist.

My question is does anyone have good methods of coping with joint pain?? I try walking but it seems like any days I do physical activity the next day is always worse. I'm just trying to find ways to cope and looking for advice.

Thanks
Lindsay
Posted 1/29/2014 10:31 PM (GMT 0)
Hi Lindsay, welcome to the forum.

Does your GI know that you are taking naproxen?

I don't see any mesalamines on your meds list. One of the meds used to treat joint pain for people with Crohn's is called sulfazine. It might be good for you, or not. It is hard to say. A rheumatologist is a good idea.
Posted 1/29/2014 10:39 PM (GMT 0)
Yes my GI is the one who prescribed Naproxen because I was taking Advil just to try and ease pain slightly. She originally wanted to try sulfazine but I have an allergy. I've also heard Immuran can have side effect of joint pain. I just having a hard time seeing the benefits to this medication.
Posted 1/30/2014 1:55 PM (GMT 0)
Hey!
Even I've been having these joint pains for a while... Knees, fingers and neck mostly... But the problem was that my calcium and serum tests came back absolutely fine, so my GI didn't give much attention to this... but now it's started again, and my neck aches horribly, really disturbing since I have my finals coming up...
Anyway, i firstly try to ignore the thing, when it's too much to bear i do a bit off exercise, on the next level i "warm it off"... Have u heard of these "warm bottles "? They're used to relieve pain for the elderly, helps... Or simply just over-iron a towel and wrap around the neck,nd repeat...
Last resort, sleep to ignore the pain :(
I've written all long crap,but really hope something helps!
Tc
Posted 1/31/2014 8:05 PM (GMT 0)
Humira really helped me with my hip pain and kept me pretty much in remission for almost 3 years until I developed anti body to Humira. Hot bath's help, also if I am in A LOT of pain I will take half of Vicodin.
Posted 1/31/2014 8:55 PM (GMT 0)
The best thing for my joint pain was to put my crohns into remission. Try not to take any medicine that have potential side effects like liver or kidney problems that would make your situation worse.
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