Posted 2/3/2014 2:21 AM (GMT 0)
I'm at my wits end, so I hope someone here can help me. Around five years ago I started getting sick. At first I thought it was the flu, because I had mono several times as a child (three months when I was nine and an entire summer break when I was twelve) and it wiped out my immune system. But, I happened to work with a woman who had Crohn's, which I'd never heard of until then. One day in the bathroom she asked me some questions, since we always seemed to be in there at the same time, and it turned out our sypmtoms were all EXACTLY the same. But, since I had a phobia of doctors and hospitals (weird, since I wanted to be a forensic pathologist) I didn't do much about it, since it would just come and go. However, when it started to get worse, the time in between flair ups where becoming shorter, I really started to worry. However, at least in large part due to my health, I lot my job. And that meant no insurence. I suffered in silence for a while after that. Until I couldn't any more. I lost two more jobs, one was a work at home even, and I just coldn't take it any more. So, I got Social Services health care and started going to the hospital. I was told by one doctor that I had the flu. FOR FIVE YEARS! That kind of broke my spirit, so I didn't go again for almost a year. Then, this past September it got to bad I had to call 911. I went to the hospital twice in that month, but was told it was probably just a bug or something. Then, in November, they hospitalized me for eight days. There was an infection that had moved from my intestine to my blood stream. I had a colonoscopy and was told I PROBABLY had colitis. I didn't feel any better by the time they discharged me, but the GP told me, when I said I was I still in pain, "You shouldn't be" and walked out, rolling his eyes. That's when I realizied that he was the one from the prevous year who'd told me I had a five year flu! So, in December, when I still wasn't better, I went to a different hospital and was in for three days. Everyone EXCEPT the GI specialist said it sounded like Crohn's and Firbromyalgia, which matched up with my research and that of both my aunt (a nurse for over 35 years, and all the other Crohn's suffers I knew) but the GI doc just sent me home with some anti spasmatics. The next week I saw my new GP, who implied that it was all in my head/due to my depression and that the pain would be managed by the depression pill she gave me. It didn't. I was back in the hospital in January, this time for seven days. I had a great doctor who actually listened to me, and who tried to eliminate several diseases, including Lupus and C1 Imuno Deffenency, but she ultimately said it was probably Crohn's/Fibromyalgia. Even the GI intern thought so. Then, when the docs who'd been helping me had their days off the same GI doc who'd told me I had IBS last time told me the same thing, and didn't want to hear anything about any of my symptoms except for what my stools were like. I got so frustrated that I gave up and let him send me home with higher doses of the same meds he'd given me before. Now I'm on Medicaid, so I get to choose new doctors who will, hopefully, finally, help me. I live near Nellis and Charleston, here in Vegas, and I was hoping some of you might be able to recomend a good GP, who takes Medicaid, that's near me. One who will LISTEN to me and try to help me. Any suggestions???"
Thanks! No matter what happens, it's good to know I'm not alone.