fistula reopened even after remicade

Hello. Been a while since I was on here last. Well I suffer from a chronic perianal fistula. I've have numerous surgeries, drains and setons. I had the last Seton in for almost a year then I started remicade in April of 2013 . Then a mimi miracle happened ....my fistula stopped draining feces. Then after 3 months of it staying clear they removed that darn Seton. Sweet relief for 1 month then the fistula abscessed and I'm back to square one. I am Still waiting to get in to see my GI.
Could someone give me a suggestion on what to do next????

I'm sorry no one has responded to your post. I just started dealing with a rectovaginal fistula back in September and only just started Humira a week ago so I don't have any advice to offer you with your horrible situation. I hope your GI will be able to find a better solution for your perianal fistulas, so sorry for what you've been dealing with, we all know the CD alone is bad enough, these nasty fistulas are the disgusting icing on the cake.

Will you be seeing your GI soon?

Oh well I'm glad you'll be seeing him tomorrow and I hope he can find a resolution for your ongoing fistual ordeal...you poor thing, I can't even imagine (and really don't want to) what dealing with that is like, I was scared enough when I started to notice gas passing through my vagina and freaked out thinking stool would also most definitely be making it's way through there too (luckily so far it hasn't but I can't tell you how much more terrifying it was with having multiple daily BM's that it was bound to happen) it must be so painful having an anal fistula with bowel movements (and likely even without bowel movements eh?).

I honestly don't know how you do it but I really hope your GI can find a better resolution for you...be sure to update on how things go.

Thanks poopsalot, me too lol, I've never been in remission the entire 23 years I've been sick (either allergic or non-responsive to traditional oral meds) only thing I could ever get under control was whenever I had proctitis with rectal meds, but apparently my rectum is really bad off right now (along with the new development of the RV fistula) weirdest thing, considering my rectum is so bad off I don't even feel the tenesmus that I felt every other time when I had proctitis issues arise...this DD really throws us a loop, it's exhausting.

Should be interesting to see where Humira gets me that's for sure lol!

I sincerely hope it works for you!!!! Fingers crossed. I went to see my GI and he decided to up my treatments and after a few months if that doesnt help with my fistula we are going to put that god forsaken seton back in. Please cross your fingers for me as well....and maybe your toes and eyes....lol

Hi I have a RV fistula just bn reading ur comments wounding if anyone could help me. I have just had surgery it has failed n feel if made the fistula worse an totally gutted bn stuck house 2 weeks on antibiotics feel if am lossing ma mind way all. My surgeon thinks I should consider the bag but I feel that drastic. Just to see what other people thoughts is that's living with problem fistulas I've had it over 5 year seems to be getting worse even though my crohns is in remission my consultant said after the camera test so strange it would heal. Remacade worked to close it on off bit he says this not a option after surgery so disappointed.
Thanks

I healed both my massive rectal fistulas by going on the SCD diet.  My CD went into complete remission and I have not had a symptom or fistula since 2007.  I still follow the SCD diet to this day (but not as fanatical as before), and the only drug I have ever taken was pentassa, which I still take.  I refused remicade at the time of my diagnosis.

The SCD is not an over night fix, it take 5 or 6 months of 100% fanatical dedication to the diet for it too work.  I started to see changes in my fistulas after 3 months and by 5 months both fistulas were so healed up, the setons had to be removed so they would heal completely. 

I suggest reading the book "breaking the vicious cycle"  You have to loose by trying the diet and all to gain if it works for you.