Posted 5/25/2014 12:41 AM (GMT 0)
Bumped this. D having ongoing problems. Last month, titrated off pred only to have symptoms return in 4 days, this time is was 2 days, and still on Uceris. The Remi was at maximum dose and maximum measurable(34),still not working. We are done there. Waiting for Vedo. Only thing keeping her under 20 BM's is pred. Yesterday, new torso rash. Small bumps, not itchy. Will see doc for colonoscopy Tues., but what is most logical to blame it on? Too much Remi, or off the pred...mainly curious and hopeful it does not morph. Headache and sinus pain new too. Poor kid, fighting every day.