HealingWell
Search Close Search
☰

NCOT (and any other science smart people;-)

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/21/2014 11:30 PM (GMT 0)
I spoke to Dr. Rubin's nurse. She said the fecal calprotectin was high (didn't give me a number) and my serum folate is elevated, which I guess is common with bacterial overgrowth. Dr R said that the fecal cal can be elevated from the c.difficile, so it didn't really help me with knowing if I also have a Crohn's flare. This article seems to say the same thing: http://labtestsonline.org/understanding/analytes/calprotectin/tab/test/.

Didn't you have a study that says that bacterial infections don't raise fecal cal? Just wondering. I talked with my local GI and we are having Dr.Rubin totally take over my care. My local GI was very nice about it but I did feel guilty. Dr. R's nurse is awesome..I know I'm making the right choice. I feel like crap (pun definitely intended) I hope this is all c.diff and not the evil Crohn's!
Posted 10/22/2014 1:11 AM (GMT 0)
I would answer, but I've, uh, got important science-y stuff to do. Laters! :p

*sneaks back in* If memory serves, it was SIBO which didn't raise FC. Other bacterial infections do, however. I'll see if I can find the study again.

Yeah, I can:
www.ncbi.nlm.nih.gov/pubmed/18431069

As for c. diff, this somewhat dense abstract shows that positive c. diff stool samples had a higher FC level on average than negative c. diff stool samples within a hospital setting.
www.ncbi.nlm.nih.gov/pubmed/24464697

And finally, here's an article which is denser than a black hole, but basically, yeah FC is much higher in patients with c. diff infections compared to controls.
www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0106118

So there's a good chance it's c. diff and not Crohn's. Hope this helps; I'm kinda braindead.... >_>
Posted 10/22/2014 1:49 AM (GMT 0)
Thanks! I think I actually found a doc where I don't have to work so hard to figure things out....I think he'll do the work for me....won't that be a nice change of events?!
Posted 10/22/2014 3:08 PM (GMT 0)
I am not scientifically smart, hehe, but my experience with c-diff and a crohns flare went like this... I got c-diff from cipro and over a period of several weeks, it precipitated into a horrible crohns flare. My FC was very high during c-diff and it stayed high even after c-diff resolved but left the crohns flare to rage on. My FC was 1538 and only came down when I started LDN , dropped to 18. The crohns flare and high FC lasted for two months after I tested negative for c-diff. It was horrible. I was so happy the LDN worked for me.
Posted 10/22/2014 3:57 PM (GMT 0)
Hi Pmedic,
I'm glad to hear you are finally feeling better. I'm a little worried that I am also having a Crohn's flare, but I guess it's impossible to figure out until I finish the Vanco and get the c.diff resolved. I'm really glad I switched docs as my U of Chicago doc and his clinical nurse seem right on top of things. It's a huge change for me. I think I'm finally responding to the vanco, put I still have the pain in my RLQ. At least I feel like I'm being taken seriously, which is a huge stress relief. Thanks for your response and I hope you continue to do well. Are you still on the Cizmia along with the LDN? Just curious. thanks
✚ New Topic ✚ Reply