C Diff infection..What now...Help!!!

Hi all. It has been a while since my last post. Just to give a brief summary of what has been going on ....I have been on entyvio for my crohns since about October. I have been doing so much better as far as my symptoms go....but my last sigmoidoscopy still showed inflammation.

about 1 month ago I started having symptoms as far as stool changes & diarrhea. My gastro had me do stool cultures.....and bingo.....C Diff infection.

I was put on Vanco 250 4 x day , Florastror 2x day. Did not see improvement at all so my Dr. added Dificid 2x day along with continuing the vanco. So at this point , I have been on Vanco 3 weeks & dificid almost 10 days. No improvement as of yet :(

Can anyone please share with me your experiences with C Diff & offer any insight and suggestions. All input would be greatly appreciated!!!

Thanks Gumby. Yes you are probably correct that this continuation of symptoms could be crohns roaring its ugly head... I have been on Uceris concurrently....

From what I understand I will probably have to redo the stool cultures but have to be off all antibiotics for at least 2 weeks. That too will also tell me if C Diff is eradicated.

Will be checking in with my Dr. early this week to see what will be my next step...will let you know.

Thanks Pmedic. Really don't know anything about LDN..Is that Naltrexone? I will certainly look into that thanks.

I am sorry you have C.Diff. I recently got over this and it was easily one of the worst experiences of my life. I was pretty convinced I was going to die as things kept getting worse. I went to the emergency room so many times, and was admitted twice in the hospital.

I did vancomycin. I also took probiotics. What I think really worked for me was the FMT. I did 4-5 days of it at home using a good friend as a donor.

After C.Diff I had a colonoscopy and it revealed a small ulcer in my small intestines. I actually have two of these I can feel them both, but they are responding well to entocort, and the florastor probiotic.

After I got over C.Diff I was blessed with SIBO. I used Xifaxan for that.

Please take it easy while your body fights off C.Diff.
I am still resting, eating, and sleeping alot as my body is not the same.

The change after the FMT was immediate, actually. I was on a ton of vanco the month leading up to it, stopped a few days before it, and I was also taking 4 florastor a day both the month before and the month after it.

I haven't had any problems with florastor at all. The fact that it's yeast-based is what makes it so effective against c. diff.

I developed more severe and frequent diarrhea when taking a probiotic in conjunction with C. diff treatment. I was taking Culturelle.

I am on vancomycin taper/pulse right now for recurring cdiff. Thanks to some advice from this board, I take 4 florastor per day, 2 in morning 2 at night. I don't want to speak too soon but I think it has really helped! I have a week to go for the vanco. I also eat homemade yogurt but I think the florastor is helping more than that.

I think your PA is just mis-informed. Those directions are applicable to regular probiotics that are not yeast based. If the Florastor seems to be helping, you can take them more than twice a day too.

I am currently dealing with a C Diff infection. This is my first time getting it. I had an endoscopy done along with the stool test. The endoscopy showed gastritis and bile reflux (probably due to gall bladder removal years ago). The stool test of course showed C Diff. I just took my last antibiotic yesterday. My doctor also has me on Sucralfate and Omneprazole along with Culturelle.

I know how Homeboy feels. This illness is killing me! The constant nausea and lack of eating is making my life miserable. How long does this last?! I have been told that I have to be off the antibiotics for a week before they retest my stool to see if it's gone but I'm still not feeling well after my first round of antibiotics. Is this normal? How are you guys dealing with this? What are you eating? I'm forcing myself to eat saltines and small bland meals every now and then. I'm worried that not getting the nutrients I need will keep my body from fighting this awful illness. Please tell me it gets better and if so when?

I just found out I have C-diff and am on my 2nd day of Vanco... I didn't have many symptoms of C-diff that I could tell but I guess my stool sample read differently. However, today, I am experiencing some bloating and diarrhea, although it is only coming out a little at a time (sorry probably TMI)... Has this happened to anyone else on Vanco? Not sure if it's the drug causing it or the bacteria...

Gumby44 I just started my second round of Vancomycin (taper dose). I have no other health issues really but this C Diff has got me really down. Does anyone else feel it going to your head? Is it all the meds we have to take or just the toll it takes on your strength? I see a lot of posts regarding meds and diet but what about how you guys are feeling mentally? I feel like only someone who has gone through this can relate and I don't know anyone who has had this so this forum is my only comfort.