Interstitial Cystitis and Crohns

Does anyone have both IC and Crohns? Told that Crohns being an inflammatory disease affects ALL parts of your body. Last week found blood clots in legs (DVT) which led to PE, which was also caused from Crohns - inflammatory disease causing your blood to thicken and be more prone to clots. Same reason for all of my kidney stones.

Sometimes I don't know if "they" don't have answers so it's easier to blame Crohns and not look for any other causes. I have recently made an appointment with a Crohns specialist in PA - hope he helps!

I was diagnosed with IC about 15 years ago and then Crohn's in 2012. I've had various treatments over the years including bladder ablation but nothing has really been effective in dealing with the discomfort. I have found I have some food triggers such as anything with aspartame (most especially juice w/aspartame). I've also found if I don't balance the carb intake with the veg intake I can have some pretty bad reactions which is true with Crohn's for me as well. I can totally understand your frustration! Last time I was in the ER, the intake nurse asked me to give my medical history. When I told her I had both IC and Crohn's she cringed and said 'God, two really sucky diagnosis'. No kidding...