HealingWell
Search Close Search
☰

How far away is tje CURE? ANYONE KNOW?

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/15/2015 6:32 PM (GMT 0)
I obviously don't take a plane to pick up my Humira. I get to use my airmiles rewards card when I pick my Humira up whenever I have to pay a copay (either via hubby's benefits or ABC coverage) when I get it free from Progress I don't use my airmiles as there is no copay fee or cost (hence FREE) the airmiles add up and I can use the rewards towards my groceries if I want. Life's not fair, if it was I wouldn't have Crohn's, IBS and lactose intolerance...obviously things are different depending on where someone lives when it comes to reward cards and who is eligible for free meds and who isn't. I definitely deserve free groceries for having to take meds for such a disgusting illness, regardless if you agree or not.
Posted 9/15/2015 6:45 PM (GMT 0)
Oh right. I'm sorry, I'm new to the world of airmiles: I hadn't even considered the possibility the rewards could be used for anything other than flights.

You sound a bit defensive, no offense. I had already said I would probably claim the free goodies for myself - especially free food. But I'm not going to backtrack on what I said about it being unfair, because it is blatantly unfair.
Posted 9/15/2015 9:55 PM (GMT 0)
Back in relation to the thread topic to give my viewpoint - I'm not so optimistic about a cure coming down the pipeline anytime soon, but you never know I guess. I'd rather think positive about it though versus say 'never', or 'not in my lifetime'. No one can predict either way.

I do however firmly believe that over the next year or perhaps less there is going to be a massive change in the way the disease is viewed, understood and treated for the better. I think substantial remission and control of the disease is going to become reality for many.
Posted 9/15/2015 11:29 PM (GMT 0)
Canada Mark,

Something's definitely changing in IBD world...I was at my GI's today, signed some release forms for my blood, urine, stool and tissue samples (biopsies taken during scopes) all for research, this is new, they are going to start doing IBD research globally together with all countries involved rather than separating (CCFC, CCFA and so on) they are on the trail of testing all IBD confirmed patients for research of all kinds. This is great, I kept telling them it was about time!! They're probably planning to screen everyone of us IBDers for MAP now lol!!
Posted 9/16/2015 9:18 AM (GMT 0)

Canada Mark said...
I do however firmly believe that over the next year or perhaps less there is going to be a massive change in the way the disease is viewed, understood and treated for the better. I think substantial remission and control of the disease is going to become reality for many.

Well, that's the reality for many already, in the sense that IBD is characterised as a relapsing-remitting disease and many people already have long periods of remissions (whether medication-induced or not). I have this horrible feeling that the people who respond well to the current crop of meds will probably respond well to the next generation of meds, while hopeless cases like me still continue to need surgery. In short, they can barely treat severe IBD any better today than they could 50 years ago. It was steroids which really provided the breakthrough and stopped people from dying in hospital. The biologics were the next breakthrough, but in some respects they have been quite disappointing and don't appear to have much, if at all, reduced surgery rates.

But there have been cures 'around the corner' for the past 50 years and I fully expect there to be cures 'around the corner' for the next 50 years. Who knows, when I'm on my deathbed at 90, maybe that'll be the day a cure is announced for Crohn's and UC... eyes

Post Edited (NiceCupOfTea) : 9/16/2015 3:42:38 AM (GMT-6)

✚ New Topic ✚ Reply
12