Posted 9/22/2015 6:55 PM (GMT 0)
Hi cdinhyd,
I am so sorry for what you are going through. To answer your questions, after I recovered completely from the resection surgery, which honestly took several months, I went into remission and had no pain. I have had lifelong irritable bowel and have continued to struggle with that. Currently, I think I have an infection so I'm struggling with diarrhea, but still no pain like before surgery. I am considered low risk because the Crohn's was only in my ileum and it was completely removed with surgery, I am a non-smoker, and I was diagnosed late in life. (age 47) For those reasons the docs have me on no maintenance medications, but close monitoring. If/when the Crohn's returns, then they will figure out what medication to give me at that time.
Indian food is my favorite ethnic food! My son had one college roommate from Mumbai and another with relatives in Kerala. He was lucky enough to spend 6 weeks traveling all over India after graduation. He ended out coming home and taking Indian food cooking classes, and then taught me how to make several dishes. The turmeric is supposed to have anti-inflammatory properties, so in general it is good for you. But when you have a stricture, you have to be really careful with vegetables. While lentil dal is one of my favorites, lentils can be really hard to digest. Many of the Indian dishes (as you probably know more than me) cook the vegetables for a long time and may be easier for you to digest. The basmati rice is probably safer for you than the wheat products, especially if you have a gluten intolerance at all. You will need to experiment with what works. While you are feeling terrible though, you might have to stay with pureed and well cooked vegetables. When I was really sick prior to surgery, I was only having soups with pureed vegetables and things like mashed potatoes, white rice, smoothies, etc.
Is your Crohn's disease located anywhere besides your ileum and how long is the stricture? It might be worth it for you to consider surgery if the Prednisone does not start to help. What part of India are you from? (just curious)