Posted 1/27/2016 2:19 AM (GMT 0)
I have been diagnosed with Crohn's for 2 almost 3 years now, but have most likely been suffering from it since I was a child, just took a long time to narrow down the symptoms and have been unlucky when it came to doctors. I took Pentasa for a little while but it had reverse and worse effects on me (more constipation, more stomachaches, etc.) Recently found out my Crohn's has worsened and I have it all over my small intestine and have a lot of internal and rectal bleeding, erosions, fissures, and significant amount of inflammation. I am having my first Remicade treatment tomorrow and I am very nervous even though I have heard it referred to as a "wonder drug." I am being practically forced into it by my GI and family because my Crohn's is so severe and they do not want me to have a perforated bowel/intestines. Also, I recently went to the hospital for such a terrible flare up. I can feel that the flare up came from nothing that I ate, I am just so inflamed, anemic, and dehydrated that the Crohn's has been severely active after being off prednisone (steriods) for 2 days. I am suffering from gas, cramping all over stomach and back, laying in fetal position, nausea, hot flashes as well as low temperature, and feeling faint. I know that Remicade effects everyone differently, I am not sure what to expect if anyone has any ideas or advice I would appreciate it negative or positive. I am sure I will get some kind of side effect because that is just how my body works. I just want to be able to exercise, eat what I want, go to the bathroom normally, and hopefully go into remission for as long as possible and as soon as possible.
Diagnosed with Crohn's for 2 almost 3 years, Colitis, Ileitis, Anemia, Migraines, and Kidney Stones (many other crohns side effects)
Medication: Hardly took Pentasa (didn't work for me), prednisone, iron supplements, Imitrex, ompemrazole, Miralax, acidophilus, and now starting Remicade.