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Crohn's V vitamin D

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Crohn's Disease
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Posted 5/26/2016 5:58 AM (GMT 0)
I had a reaction to my first round of Remicade. Severe arthritic pain that moved through my joints for 5 days. After my 2nd dose I had no issues, so far haha! The only difference was after the second dose I stayed for 2 bags of fluids when the first time I was disconnected and sent home. I recently saw my primary care Dr. and asked her about the reaction (my GI and surgeon didn't think it was necessarily the Remicade) and she said being deficient in vitamin D could play a part and she had treated me for vitamin D deficiency in the recent past, so now I'm taking a vitamin D supplement. I did a little research and found this article about Crohns and its relation to vitamin D.
http://www.m.webmd.com/crohns-disease/news/20130518/extra-vitamin-d-may-ease-crohns-symptoms-study-finds
Posted 5/27/2016 1:49 PM (GMT 0)
I can well believe that Vitamin D would have an impact - I lived in Corfu, Greece for 7 years, and was probably symptom free for a good 6 of those years! Sadly returning to the UK coincided with a major flare up and sadly no amount of vitamin D can turn back the clock!

I have Remicade, and have had my three loading doses, my next dose is due 30th June. I don't receive fluids afetr (save for the little flush to make sure I get all of the drug!), so I may ask for one if it may relieve the joint pain! turn
Posted 5/27/2016 5:13 PM (GMT 0)
I didn't start the vitamin D till this week and get my next Remicade in just over a week, 3 loading dose. Anyhow, the flushing after, of extra fluids seemed to be what I missed the first time and I didn't have any issues this time. Even the nurse giving the infusion told me that the extra fluid and even drinking water at home after would help with joint pains. Goodluck! Seems we always need it haha
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