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Crohn's Disease
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Posted 7/8/2016 7:01 PM (GMT 0)
It's been quite the ALMOST five years now. GI problems began in November of 2011, diagnosed with IBS in 2013, then UC in 2014, then back to IBS in 2015, now I'm being told I have Crohn's. Started flaring like crazy this past April, lost 13 pounds in two and a half months, severe diarrhea, fevers, night sweats, cramps, joint pain, etc... Finally got my second Colonoscopy this past Wednesday, and I have inflammation all throughout my colon. Put back on Lialda and Prednisone and dreading the side effects.

/Rant over
Posted 7/8/2016 9:31 PM (GMT 0)
Lialda is really not proven to work in CD. It may just be an overpriced placebo
I don't know too many details about what is going on but it sounds severe.
You might need to start a biologic or at the very least an immunomodulator. Where is the extent of your inflammation?
Is the doctor who is treating you for this an IBD expert?
Posted 7/8/2016 10:20 PM (GMT 0)
Studies show Lialda is almost less effective than placebos for Crohns. If pred works, then it isn't IBS.
Posted 7/9/2016 2:16 PM (GMT 0)
It'll be interesting to see what happens. I just reluctantly took my first dosage of Prednisone this morning after breakfast. The GI has me on 30mg for a week and a half, followed by a 5mg taper every week. I was on this stuff in 2014 and loved the initial effects (of course), but the side effects were atrocious. As for Lialda, I'm going to give the it a shot, but my hopes aren't very high.
Posted 7/9/2016 3:18 PM (GMT 0)
Sorry about your dx, have you discussed taking Budesonide instead of pred? There is a version for the large intestine, maybe less side effects than straight pred.
Posted 7/11/2016 8:09 PM (GMT 0)
Pred should help, but as others mentioned, it's for temporary use to help get you out of a flare.

Lialda is for mild to moderate Ulcerative Colitis. It's not helpful if you have Crohn's, and it's of dubious benefit if you have UC that is severe.

I would suggest you find another practice, one that takes you more seriously and that knows how to treat IBD better. If you have bad UC, or Crohn's, you need to be on different meds.
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