Mystery pain episodes

I recently moved to Canada, and am waiting to get in to see a specialist. This means I've been without my Humira for seven months, since a GI doc has to sign off on a form for it to be paid for by insurance.

As a result, I've developed new symptoms I'm hoping people can help me figure out. I've had at least five incidents where I wake up to find I've passed diarrhea in my sleep, which I've never heard even when I was in a flare.

Meanwhile, I've also started to experience brief but excruciating pain episodes. They last about 45-90 minutes. The pain is primarily above my belly button, and feels like strong and unrelenting cramping, like my stomach is a giant rock. Sometimes accompanied by intestinal pain. Even knowing it will only last an hour has not helped, with pain from 6-9 out of 10. I cannot figure out any triggers, food or otherwise.

Last weekend I went to the ER in the hopes that a doc could figure out what was going on while it was happening. I was crying from the pain in the waiting room, but it was subsiding by the time I was seen, so I don't feel like they got a good assessment of it. I also suspect they did not believe my pain rating. It is truly the worst thing I've ever experienced, even compared to post op pain. They gave me morphine pills and sent me home. It took 20mg to be able to control the pain enough to sleep. The next three days I experienced abdominal aches that felt like I'd either had terrible cramps or maxed out on abdominal exercises. Low, low appetite and difficulty drinking enough water to stay hydrated. The low level lower abdominal pain has come and gone all week, also new.

The one good outcome is that this should speed up my referral, but it is likely to be a few months yet before I can get seen. I'm terrified I'm going to flare before I get back on the Humira. The only pain control option I have is OTC Tylenol as the ongoing opiate crisis means no doc will prescribe anything stronger. I have started using CBD oil to try to manage pain and inflammation, but I think it's too early to say if it is helping or not.

Has anybody experienced anything similar? Any suggestions for a managing the pain? What is going on here?

Stats:
Diagnosed at 19 in 2002. Resection 2009, in remission but daily diarrhea, joint pain, chronically elevated CRP (presently approximately 120). Taking 150mg MP6. Should be taking Humira every ten days. I cannot eat dairy, eggs, gluten. Try to eat low sugar but with no appetite I'm stuck using sugar to get enough calories.

I don't think anybody in my family can make anything happen faster. Since I'm new to the country I don't have any connections with doctors either. I think I may just be SOL until I get called off a wait list. They originally told me 8-10 months but I figure I'll be hospitalized by then if I'm not lucky. But I guess if I get hospitalized then I'll have a GI doc at least, lol.

I'm in BC, Vancouver. I have MSP and blue cross. They told me at the ER that they'd refer me to a doc but that they couldn't do anything other than manage my pain in a crisis. They said they "didn't think we need to call the on call doc since you don't have an obstruction"

They recommended that "next time come in on a weekday" when there is a GI around. Like I get to choose when my body freaks out and procrastinated until it was the weekend.

Omg I get this exact pain! Only mine lasts all day and sometimes for days at a time!! Mine completely went away after my resection and then came back 3 and half years later when I flared. I have never been told what it is but always believed they are partial obstructions. Stupidly I have never been to hospital with them but just wait it out in agony as they have always eventually passed. I might go to ER next time I get it bad. Luckily I haven't really had them for the past year while on azathioprine.