Posted 1/25/2018 4:55 PM (GMT 0)
I have seen people on jpouch.org who had surgery for UC, got a jpouch, and then later got diagnosed with Crohn's. I wonder how common that is.. It's hard to find answers to these types of questions. We have a user on the UC board who had surgery, and has chronic pouchitis (ks1905), now his diagnosis is Crohn's I believe. He treats it with biologics and antibiotics.
If you do three steps, you could keep the end ileo for a while, and see how it works for you. If you do 2 steps, you will have a loop. Mine was very hard to live with, and I wanted to reverse it ASAP. Not everyone feels that way about a loop ileo though, some people have okay experiences and don't mind it. The problem with the end ileo, after the first step of three, is that you will have your rectum, and if it's inflamed, it can cause some pretty debilitating symptoms on it's own (without the colon). Mine was calm luckily, but some people have bleeding, tenesmus, urgency. You wouldn't pass stool, but there is still blood and mucous that can form in the rectum.