Losing hope

I've had an upper and lower GI done. There were a couple of issues found and during my follow up appointment he wanted to check my CRP and another lab that are markers for Crohns, they both came back elevated and said he was positive I had Crohn's. So he ordered a capsule study. I have been dealing with this for years and finally thought there was glimmer of hope. Today I was told the results of my capsule endoscopy. After the call I broke down in tears because I've been trying to find answers for years and I'm back to square one of not knowing. I've even had one hospital and a neurologist document that I'm basically crazy and nothing is wrong, it's all psychological. So I am left with no answers yet again. I can't eat. My clothes are hanging off of me. If I do eat my abdomen instantly swells and I look like I'm pregnant. Then the debilitating pain starts instantly, it's so bad I break out in a cold sweat then it's run and I do mean run to the bathroom. I've tried going out on many dates with my husband only to have to rush to the restroom instantly, completely miserable, and just have to cancel plans and go home. You can only imagine how much of an impact its having on my marriage. I'm constantly having to stay close to a bathroom. I run weird random fevers with no other symptoms. Getting stressed out only makes it worse. I have, in just a little over a week, lost 14 pounds. I stay completely exhausted. Just taking a shower wears me out. I thought finally I could get some answers and get some sort of life back, but that little bit of hope I had left is gone now. I am at point now where I want to just give up. I don't know what to do. I'm exhausted down to my core and I just want to just give up bc I have no quality of life. Every single day revolves around my unknown issue and the restroom . I'm so lost.

These what the findings were:
Squamocolumnar junctional mucosa with inflammation and hyperplasia, consistent with reflux esophagitis.
Mucosal changes including ringed esophagus were found in the entire esophagus.
esophageal mucosal changes suspicious for eosinophilic esophagitis.
Benign-appearing esophageal stenosis. Dilated.
One benign-appearing, intrinsic stenosis was found at the
gastroesophageal junction. This stenosis was mildly severe and measured less than one cm (in length). The stenosis was traversed. A TTS dilator was passed through the scope. Dilation with an 18-19-20 mm x 8 cm CRE balloon dilator was performed to 20 mm.

This is what the upper was and the lower was all normal.

I agree with @straydog, you NEED another opinion at this juncture. To send you home in this state with no treatment plan or answers is ridiculous. I would seriously consider a trip to the Cleveland Clinic or Mayo at this point.

If you can get to another recommended GI that would great to. They should be doing upper and lower scopes with biopsies, also get tested for Celiac or maybe just avoid Gluten to see how you feel. Believe me, it would be great news to not have IBD, but regardless, you can't go on like this. Maybe your Husband can advocate for you and start demanding some answers.

Hope you get to the bottom of things soon, and let us know how things are going.

Please ask your dr to order stool testing to rule out infections, parasites & other pathogens. By the way, your PCP can order the stool testing. Also, be sure to obtain copies of the medical reports of the testing you have had done to date. You need to keep a file at home of all of this. I know you did the pill cam test, what about a colonoscopy with biopsy's?

Take care.