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Crohns and back pain.

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Crohn's Disease
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Posted 6/29/2019 3:45 AM (GMT 0)
I have had Crohn's for about 7 years now and my symptoms have mainly been stomach pain and joint pain. I was on Remicade for about a year but had to quit because I built up anti bodies. GI started me on Budesonide while waiting for the OK to switch to Entyvio. I have finished my loading doses and my first 8 week dose is about 2 weeks away. I have also been tapering off of Budesonide and took my last pill 2 days ago.The stomach pains started to return about a week ago and now I am getting a lower right back pain (which I have never had before) that seems to be directly in line with the stomach pain. The back pain is getting worse by the day and much worse the the stomach pain. Coming off of Budesonide in the past has caused me muscle aches but never back pain. Has anyone experienced back pain as a withdrawal symptom of Budesonide or could this be a Crohn's symptom I've never had before. I have had monthly blood test for the last 5 months and everything has been within limits.
Posted 7/1/2019 11:21 AM (GMT 0)
Hi

Didn’t want to read and run. I had a massive attack of arthritis at my lowest with CD but I have never had a back pain on my left as you described.

I wonder if the pain is linked to your large intestine (or it pushing on something?) rather than a muscular issue in your back.

Can you get an emergency appt with your GI? Imho this needs investigated ASAP.
Posted 7/1/2019 7:29 PM (GMT 0)
I had back pain a couple of months ago. My back is still not comfortable. I am going to ask my primary care physician for a checkup such as MRI or X-Ray at my next physical appointment. But my situation could be different from yours.

https://www.healingwell.com/community/default.aspx?f=17&m=4122457&g=4122542#m4122542
Posted 7/2/2019 12:12 PM (GMT 0)
Erudite Paul...I remember that other post of yours...and Dale this may help too (although yours seems localized and you should chat with your doc). Back issues run in my family so I am not sure if my back stuff is really CD related. However, I know my not so terrific core muscles and leg muscles are a part of the back issues and some of that muscle issue is a tertiary problem from the CD. So I guess what I am saying is hip bone connected to the thigh bone etc smile

I highly recommend seeing if you can get into physical therapy. It was what helped my back the most. It was the stretching and the core strength without major impact or exhaustion that really seemed to make the whole spine to toes feel better. Oddly, they also encouraged me to get the rubber wedges that push your big toe over too--that tiny thing makes a world of difference in my legs and back.

Take Care
Posted 7/2/2019 2:00 PM (GMT 0)
Dale, it could be a number of things causing the back pain. Habs made some excellent points about the back pain. If you can get in to see your gi without waiting a long time, start there. If the gi isn't interested much, see your pcp. I hope you can get some answers.
Posted 7/3/2019 12:11 AM (GMT 0)
Sorry for taking so long to get back to all the responses. I posted something last night but it seems to have disappeared. For the last few days the stomach pain has been getting less and less in fact it is almost gone now and so is the back pain. It sure seems like they are related. I have an appointment with my GI after my 4th dose of Entyvio July 12th so will bring it up to him.
Posted 7/18/2019 7:20 PM (GMT 0)
Dale B ask your doc about "referred pain". I've had similar symptoms with another health issue.
Posted 7/20/2019 6:08 PM (GMT 0)
For those of you who notice they
‘re getting back pain and have IBD, I recommend you get tested for Ankylosing Spondylitis (A.S.) The average time it takes to reach a Correct diagnosis with back pain is usually 7-10 years. There is a small percentage of people with Crohn’s disease who have a cluster of autoimmune diseases and those are Crohn’s and A.S. And also Crohn’s, A.S. AND Psorasis. I’m in the latter category. Go see your family doctor and ask for a referral to a Rheumatologist.
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