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Crohn's Disease
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Posted 3/30/2020 8:28 PM (GMT 0)
Hello, my name is donna I was diagnosed16 years ago with mild crohns. Hope everyone is doing as well as can be expected with all that is going on around us.
Recently had a colonoscopy and they found a lot of active disease. They put me on budesonde ec 3mg x3 a day. Also they want me to start entyvio. My insurance denied this drug and wanted me to do humria but Dr. office did a great job and got this overturned. They picked this drug because I had breast cancer 16 years ago and felt it would be safer. I had researched the humria, and now the entyvio and there is concern of a very serious neurological issues and there is a cancer risk I see now. I am now freaking out and am scared to death. I'm now wondering if I would be better off with the humria. I would appreciate any and all information you could give me.
Posted 3/30/2020 9:58 PM (GMT 0)
Sorry to hear your recent struggles. Good that you seem to be getting good care, as the meds recommended will be your best chance at an effective treatment plan.

Almost everyone that gets introduced to anti-TNF therapy will do some of there own research, and ultimately end up "scared to death". When Remicade first came into use, if even had a FDA black box warning. The cancer fears were based on massive dosages of these meds as they would be prescribed to transplant recipients.

I'm not trying to say that any of the meds commonly used to treat Crohn's today are totally safe, but the as time has gone on, most have tolerated anti-TNF's pretty well.

Hope Entyvio works well for you. If not, there's always other options. Remicade is still the gold standard, but Stelara seems to be also particularly well received. Good Luck going forward.
Posted 3/30/2020 10:15 PM (GMT 0)
Thank you 73 Monte for your reply. I know I shouldn't have researched this drug. I guess I have to much time on my hands with every thing thats going on. I know all of the drug have nasty side effects this one about neurological issue are really scary. I know I need to be on something. Thanks again.
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